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CDDC - Colorado Developmental Disabilities Council, Advocacy, Inclusion, Systems Change
 
 
                                                

   

 
  Legislative and Public Policy Committee    Meeting Notes  March 23

Legislative and Public Policy Committee

                                                           


Meeting Notes and Activities
Date: April 12, 2010 
Submitted by Sheryle Hutter

  1. Meeting Notes – April 5, 2010                                 All                   
  2. 2010 Legislative Update                                          Sheryle Hutter
  3. Committee Responsibility - Update                          All
  4. Health Update                                                        All
  5. Employment Update                                               All                                                           
  6. Proposed 2010 Action                                             All
  7. New business                                                         All
  8. Old business                                                          All

Members:  Mike McCarty – Chairperson, Katie Grange, Julie Farrar, Mike Hoover, Ed George, Jim Vail and Representative Jerry Frangas

The CDDC PP/L committee meeting was brought to order at 11: 15 A.M. by Chairman Mike McCarty

A quorum was present for voting items.

1.       April 5, 2010 meeting notes were read and approved.

2.       AGENDA ITEM DISCUSSION:

Legislative Update:

Marcia Tewell “Developmental Disabilities and Autism Oversight Committee and Task Force” Joint Senate Resolution 10-027 was announced during the Autism Commission report on Thursday April 8, 2010 1:30 pm House Health & Human Services. Will be Introduced to the Senate during the week of 4/12/2010. Aligning with the resolution recommendation DDC PP/L will conduct a meeting of interested advocacy /support groups to implement a consortium to identify and address system change and public policy direction insuring that the “best interest” of individuals with developmental  disabilities continue to be the focus of actions taken by the Colorado Developmental Disabilities Council. The committee voted to conduct the first meeting of the  “Systems Change and Public Policy Consortium” be held on May 12, 2010 11:30 A.M.- 3:30 P.M. at Denver Police Station #3, I-25 and University.  PP/L Committee will write a letter to Senate sponsors clarifying position on sheltered workshops and intent to equitably include all developmental disabilities as defined in Federal law.

SB10-002 Medical Ins. Coverage…Will testify before House Committee and request further amendment of this bill to include all ages and disabilities. To be scheduled in Senate Appropriations.

HB10-1025 –Colorado Medical Treatment Decision Act. This bill amends the Act and conditions for the “Living Will” and has already been passed by both the House and Senate and is aligned for signature. CDDC opposes this bill as written, and submitted a letter to the Senate President expressing concern for individuals with disabilities. In line for Governor’s signature. PP/L will participate in summer training and education programs focused on Advanced Directive options.

NHP – HB10-1379 & HB10-1324 set the rate increase % for 2010-2011. DDC supports the direction, however, would like to see a $0 increase for 2010 –2011 with review and equitable increase across the industry for the future. Although HB10-1324 has already been passed into law CDDC delivered a letter stating our position on SB10-1379, the bill came back to the House where it was passed as they re concurred with Senate amendments reducing but not eliminating the rate increase for 2010.   

County Mill Levy DD FMAP – DHS/HCPF have now posted the Q & A’s, Technical Assistance Guide, and letter to counties on the HCPF website. The link is: http://www.colorado.gov/cs/Satellite/HCPF/HCPF/1219400774885  CDDC and PP/L will support forward movement and Marna is to represent the council. Most county commissioners are receiving communication from consumers and advocates requesting that they pursue this source of revenue. In many cases County Commissioners are not responding to consumers so direction. A meeting will be scheduled during early May to determine future direction. 

Family Care Giver –Nothing new, however, will get status report at CDASS meeting this PM

Nothing About Us Without Us. – SB10-87 SOS authority for “Volunteer Lobbying” based upon our request supported by many other groups, to be amended when it is heard on the House floor to reflect that volunteer lobbyists are only required to register with the Chief Clerk of the Legislature, the Clerk will then share the registration information with the SOS. Referred to House Appropriations – scheduled for Friday April 16, 2010, Mike Hoover to write a letter opposing as currently written.

3.       Committee Responsibility Update –

Mike McCarty – Testified on SB10-175 April 5, contact Imagine to find out how mill levy funding is being spent, forgot to attend the Autism Commission Report on Thursday April 8, 2010

Mike Hoover – Testified on SB10-175  4/5/10. SB10-87 still to be scheduled

Jim Vail – reviewed current bills and concurred with committee direction.

Ed George – Testified on SB 175 4/5/10, reported on Mental Health positions on current bills.

Marcia – Followed up on SJR10-027, sent script to Mike McCarty for SB resolution report 4/6/10

Sheryle – Attended hearings, testified, communicated with all, followed up on 5 bills assigned, lead team in testimony on SB10-175

4.  Healthcare Update – Following the many Legislative Bills that will impact healthcare in Colorado and how    action will be impacted by National Healthcare Reform. Attended Eligibility Modernization Task Force   reported on Affordable Healthcare  Project and Medicaid Buy-In program – to begin in fall 2010 with education and outreach projects.

5.  Employment – Everyone will track job bills. Employer letters will be sent out to organizations and           companies  new to Colorado.…CDDC will begin notifying employers of ADA Hiring Rules. Medicaid Buy-In program – to begin in fall 201 with education and outreach projects.

6.   2010 Legislative Action.

      3-5 bills to be pursued by Sheryle during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Defeated on first reading

HB10-1019 – Frangas - Disability Parking Bill – Passed committee, amended and scheduled for House Appropriations 4/16/10. Support and presence at hearing.

HB10-1152 - Frangas - Civil Rights, enforcement of ADA  - Passed out of House Committee, amended and scheduled in House Appropriations for Friday April 16, 2010 Mike McCarty an, Mike Hoover will write letter of support. Sheryle and Mike McCarty presence at hearing

SB 10-002 – Medical Insurance Coverage Denials – Appeals Steadman – Support and lead lobby team for amendments. Stalled in Appropriations.

HB10-1025 Colorado Medical Treatment Decision Act – Strongly oppose, Set for signature.

SB10-175 – Review and support with amendments for consideration – Testify to the necessity of many modifications to current law.

CDDC is providing support or opposition to several other bills with a letter.

SB 10-126 “Pharmaceutical Transparency Act” Support –Senate Appropriations passed , going to Senate Committee as a Whole

SB10-153 – Behavioral Health Screening and Efficacy – Support – Passed House Human Services on 4/16/10 going to House Committee as a Whole.

Follow up for position

HB10-1213 – Support with further amendments, our concerns being considered and senate amendments more strongly support CDDC concerns. Passed both House and Senate, headed for signature

HB10-76- Unreasonable Insurance Claims Practices – Letter of support – still waiting for scheduling in House Judiciary.

Sheryle has contacted HCPF inquiring about Early Intervention Program Waivers, HCPF to begin research next week, nothing new to report at this time. Will give until Friday

7.       New Business – Next meeting of  “COI” (Conflict of Interest) Task Force will be April 22, 2010 10-3 pm – Ft. Logan Pavilion Room.33550 W. Oxford Ave.

8.       Old Business- None

ACTION/MOTION/CONSENSUS

4/5/10 meeting notes approved

Concurrence with agenda items, discussions and decisions

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike McCarty – follow up with Imagine, will write a letter of support on HB10-1019 and HB10-1152.

Mike Hoover – Write email to House Appropriations opposing SB10-087 as currently written.

 Ed George – not in attendance

Jim Vail – Review new bills and report thoughts at April 19, 2010 meeting.

Marcia - SB10-002 follow up on pay and chase, follow up with Rep Primavera for meeting attendance at a PP/L meeting in April, follow up on JSR10-027. Review DRAFT Invitation for SC/PP Consortium Meeting by April 19, 2010.

Sheryle - continue to follow up on DD Waiver for Early Intervention Programs, research summer training/education related to “Advanced Directives”, write letter endorsing resolution for May as Mental Health Month, attend CDASS mtg, HB10-1019 an HB10-1152 hearing 4/16/10, email Pat Murphy to reserve community room for SC/PP Consortium Meeting, prepare DRAFT Invitation….report on all 4/19/2010.

Those in attendance, Mike McCarty, Mike Hoover, Jim Vail. 

Excused : Representative Frangas

Absent  Katie Grange, Ed George

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member – Donna Downing

Meeting adjourned at 1:00 P.M.Next meeting – April 12, 2010, 11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing room #0107.

Meeting Notes and Activities
Date: April 5, 2010

Submitted by Sheryle Hutter

  1. Meeting Notes – March 29, 2010                              All                   
  2. 2010 Legislative Update                                          Sheryle Hutter
  3. Committee Responsibility - Update                          All
  4. Health Update                                                        All
  5. Employment Update                                               All                                                           
  6. Proposed 2010 Action                                            All
  7. New business                                                        All

  8. Old business                                                         All

Members:  Mike McCarty – Chairperson, Katie Grange, Julie Farrar, Mike Hoover, Ed George, Jim Vail and Representative Jerry Frangas

The CDDC PP/L committee meeting was brought to order at 11: 15 A.M. by Chairman Mike McCarty  

A quorum was present for voting items.

1.       March 29, 2010 meeting notes were read and approved.

2.       AGENDA ITEM DISCUSSION:

Legislative Update:

Marcia Tewell reports SB10-121 “Developmental Disabilities and Autism Oversight Committee and Task Force” will be replaced by a Joint Senate Resolution (number still unknown) to be introduced during the Autism Commission report on Thursday April 8, 2010 1:30 pm House Health & Human Services. PP/L Committee requests that Mike McCarty be present to speak as representative of CDDC and Sheryle will be present to support.  Marcia will send Mike a script. 

SB10-002 Medical Ins. Coverage…Will testify before House Committee and request further amendment of this bill to include all ages and disabilities. Marcia will research the vendor cap – pay and chase and whether there is existing statute that caps the cost on vendor fee.

HB10-1025 –Colorado Medical Treatment Decision Act. This bill amends the Act and conditions for the “Living Will” and has already been passed by both the House and Senate and is aligned for signature. CDDC opposes this bill as written, and submitted a letter to the Senate President expressing concern for individuals with disabilities. The bill has now been signed by both the Speaker of the House and President of the Senate and is on its way for Governor signature. PP/L will participate in summer training and education programs focused on Advanced Directive options.

NHP – HB10-1379 & HB10-1324 set the rate increase % for 2010-2011. DDC supports the direction, however, would like to see a $0 increase for 2010 –2011 with review and equitable increase across the industry for the future. Although HB10-1324 has already been signed into law, CDDC delivered a letter stating our position on SB10-1379 and PP/L will be poised to testify before the Senate Committee if there is enough advance notice to do so.   

County Mill Levy DD FMAP – DHS/HCPF have now posted the Q & A’s, Technical Assistance Guide, and letter to counties on the HCPF website. The link is: http://www.colorado.gov/cs/Satellite/HCPF/HCPF/1219400774885  CDDC and PP/L will support forward movement and Marna is to represent the council. Most county commissioners are receiving communication from consumers and advocates requesting that they pursue this source of revenue. In many cases County Commissioners are not responding to consumers so direction will be determined by the end of April. 

Family Care Giver – Nothing new, however, will continue to monitor implementation plans.

Nothing About Us Without Us. – SB10-87 SOS authority for “Volunteer Lobbying” based upon our request supported by many other groups, to be amended when it is heard on the House floor to reflect that volunteer lobbyists are only required to register with the Chief Clerk of the Legislature, the Clerk will then share the registration information with the SOS. Referred to House Appropriations – not yet scheduled.

3.       Committee Responsibility Update –

Mike McCarty –  Will testify on SB10-175 today April 5, contact Imagine to find out what mill levy funding is being spent on, reports that Mike White has been hospitalized and probably won’t be able to commit to the DDC, will attend and report for the Autism Commission Report on Thursday April 8, 2010

Mike Hoover – Testify on SB10-175 today 4/5/10 and SB10-87 as scheduled - TBD

Jim Vail – review current bills and communicate thoughts.

Ed George – Testify on SB 175 today 4/5/10, reported on Mental Health positions on current bills. A big thanks to Ed for communication with Mental Health America regarding SB10-175..the information was very helpful. 

Marcia – Followed up on SB10-121 replacement resolution, assisted in the writing of a letter to Rep Ferrandino and Senator White supporting HB10-1379 and asking for amendment.

Sheryle – Attended hearings, testified, communicated with all, followed up on 5 bills assigned and wrote letter of position on HB10-1379. Completed the review of SB10-175 and advised through an inquiry and fact sheet areas of concern.

4.       Healthcare Update – Following the many Legislative Bills that will impact healthcare in Colorado and

how action will be impacted by National Healthcare Reform. Must monitor Hospital Provider Fee Project and Medicaid Buy-In program for impact. Senator Keller reports on current State Healthcare Reform and alignment with the National Healthcare Reform Bill, Marcia will forward email to PP/L Committee.

5.       Employment – Everyone will track job bills. Employer letters will be sent out to organization/companies new to Colorado.…Sheryle provided resource list and Marcia will finalize the letter and begin to notify employers of ADA Hiring Rules. Sheryle will follow up on actions related to the Medicaid Buy In Program.

6.   2010 Legislative Action.

      3-5 bills to be pursued by Sheryle during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Defeated on first reading

HB10-1019 – Frangas - Disability Parking Bill – Passed committee, being amended and will be sent to Appropriations.            Support and testify – waiting on schedule.

HB10-1152 - Frangas - Civil Rights, enforcement of ADA  - Passed out of House Committee, being amended and will be sent to Appropriations. Support and testify, waiting on schedule

SB 10-002 – Medical Insurance Coverage Denials – Appeals Steadman – Support and lead lobby team for amendments.

HB10-1025 Colorado Medical Treatment Decision Act – Strongly oppose, Set for signature.

SB10-175 – Review and support with amendments for consideration – Testify to the necessity of many modifications to current law.

CDDC is providing support or opposition to several other bills with a letter.

SB 10-126 “Pharmaceutical Transparency Act” Support – waiting on Senate Appropriations

SB10-153 – Behavioral Health Screening and Efficacy – Support – Passed 2nd reading in Senate

Follow up for position

HB10-1213 – Support with further amendments, our concerns being considered and senate amendments more strongly support CDDC concerns.

HB10-76- Unreasonable Insurance Claims Practices – Letter of support – still waiting for scheduling in House Judiciary.

Sheryle has contacted HCPF inquiring about Early Intervention Program Waivers, HCPF to begin research next week, nothing new to report at this time.

7.       New Business – Next meeting of  “COI” (Conflict of Interest) Task Force will be April 8, 2010 10-3 pm – Ft. Logan Pavilion Room.33550 W. Oxford Ave.

Autism Commission to report on HHS Committee Thursday 4/8/2010 1:30 pm – LBS-A

8.       Old Business- None

ACTION/MOTION/CONSENSUS

3/29/10 meeting notes approved

Concurrence with agenda items, discussions and decisions

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike McCarty – follow up with Imagine, testify on SB10-175, confirm CDDC support at the Autism Commission Report hearing on 4/8/10, report on 4/12/10.

Mike Hoover – Testify to concerns on SB10-175

Ed George – Testify to concerns on SB10-175

Jim Vail – Audience participation at hearing on SB10-175

Marcia - SB10-002 follow up on pay and chase, follow up with Rep Primavera for meeting attendance at a PP/L meeting in April, Senator Keller reports on current State Healthcare Reform and alignment with the National Healthcare Reform Bill, Marcia will forward email to PP/L Committee, all by 4/12/10. Send script to Mike McCarty for SB resolution report by 4/6/10

Sheryle Provide resource information for Employer letter…continue to follow up on DD Waiver for Early Intervention Programs, research summer training/education related to “Advanced Directives.”, further research NH annual % increase cap, write letter endorsing resolution for May as Mental Health Month, report on all 4/12/2010.

Those in attendance, Mike McCarty, Mike Hoover, Ed George, Jim Vail. 

Excused : Representative Frangas

Absent  Katie Grange

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member – Donna Downing

Meeting adjourned at 1:00 P.M.

Next meeting – April 12, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing room #0107.

Meeting Notes and Activities
Date: March 29, 2010
Submitted by Sheryle Hutter

  1. Meeting Notes – March 22, 2010                             All                   

  2. 2010 Legislative Update                                          Sheryle Hutter
  3. Committee Responsibility - Update                          All
  4. Health Update                                                        All
  5. Employment Update                                               All   
  6. Proposed 2010 Action                                             All
  7. New business                                                         All
  8. Old business                                                          All

Members:  Mike McCarty – Chairperson, Katie Grange, Julie Farrar, Mike Hoover, Ed George, Jim Vail and Representative Jerry Frangas

The CDDC PP/L committee meeting was brought to order at 11: 15 A.M. by Chairman Mike McCarty

A quorum was present for voting items.

1.       March 22, 2010 meeting notes were read and approved.

2.       AGENDA ITEM DISCUSSION:

Legislative Update:

Marcia Tewell reports SB10-121 “Developmental Disabilities and Autism Oversight Committee and Task Force” has been Postponed Indefinitely. Marcia to inquire as to the resolution # and copy or the resolution amended to align with Council goals and objectives.

SB10-002 Medical Ins. Coverage…Will testify before House Committee and request further amendment of this bill to include all ages and disabilities. Marcia will research the vendor cap – pay and chase and whether there is existing statute that caps the cost on vendor fee.

HB10-1025 –Colorado Medical Treatment Decision Act. This bill amends the Act and conditions for the “Living Will” has been passed by both the House and Senate and is aligned for signature. CDDC opposes this bill as written, and submitted a letter to the Senate President expression concern for the disabled. PP/L agreed to participate in summer training and education programs focused on Advanced Directives.

NHP – HB10-1379 sets the rate increase % for 2010-2011. DDC supports the direction, however, would like to see a $0 increase for 2010 –2011 with review and equitable increase across the industry for the future. CDDC will write a letter stating this position and PP/L will be poised to testify when the bill is before the Senate Committee.  

County Mill Levy DD FMAP – DHS/HCPF have now posted the Q & A’s, Technical Assistance Guide, and letter to counties on the HCPF website. The link is: http://www.colorado.gov/cs/Satellite/HCPF/HCPF/1219400774885  CDDC and PP/L will support forward movement and Marna is to represent the council. Most county commissioners are receiving communication from consumers and advocates requesting that they pursue this source of revenue. Continuing to pursue county commissioners.

Family Care Giver – Nothing new, however, will continue to monitor implementation plans.

Nothing About Us Without Us. – SB10-87 SOS authority for “Volunteer Lobbying” to be amended when it is heard on the House floor -volunteer lobbyists are only required to register with the Chief Clerk of the Legislature and the Clerk will share the registration information with the SOS.

3.       Committee Responsibility Update –

Mike McCarty, He has not yet made contact with “Imagine” or contact with a potential council nominee, however, still trying, will report on April 5, 2010 and testify on SB10-175 on April 5, 2010.

Mike Hoover – Will prepare to testify on SB10-175.

Jim Vail – nothing for this week.

Marcia – Followed up on SB10-121, will represent the Council on the “Conflict of Interest” Task Force and will be reporting in the future.

Sheryle – reports that the 2010 session schedule is on overload and bills are being introduced that will be critical to the DD community. Wrote letters, and testified on several bills.

4.       Healthcare Update – Following the many Legislative Bills that will impact healthcare in Colorado and how they will be impacted by National Healthcare Reform. Must monitor Hospital Provider Fee Project and Medicaid Buy-In program for impact. Senator Keller to report on current State Healthcare Reform and alignment with the National Healthcare Reform Bill.

5.       Employment – Everyone will track job bills. Employer letters will be sent out to organization/companies new to Colorado.…Marcia will finalize the letter and begin to notify employers of ADA Hiring Rules.

6.   2010 Legislative Action.

      3-5 bills to be pursued by Sheryle during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Defeated on first reading

HB10-1019 – Frangas - Disability Parking Bill – Passed committee, being amended and will be sent to Appropriations.            Support and testify

HB10-1152 - Frangas - Civil Rights, enforcement of ADA  - Passed out of House Committee, being amended and will be sent to Appropriations. Support and testify

SB 10-002 – Medical Insurance Coverage Denials – Appeals Steadman – Support and lead lobby team for amendments.

HB10-1025 Colorado Medical Treatment Decision Act – Strongly oppose, Set for signature.

SB10-153 -Behavioral Health Screening and Efficacy – Review and advise.

SB10-175 – Review and support with amendments for consideration.

CDDC is providing support or opposition to several other bills with a letter.

SB 10-126 “Pharmaceutical Transparency Act” Support

SB10-153 – Behavioral Health Screening and Efficacy – Support

Follow up for position

HB10-1213 – Support with further amendments, our concerns being considered and senate amendments have not yet surfaced.

       HB10-76- Unreasonable Insurance Claims Practices – Letter of support.

Sheryle has contacted HCPF inquiring about Early Intervention Program Waivers, HCPF to begin research next week.

7.       New Business – Next meeting of  “COI” (Conflict of Interest) Task Force will be April 8, 2010 10-3 pm – Ft. Logan Pavilion Room.33550 W. Oxford Ave.

Celebrating March as Women’s History Month.

8.       Old Business- Autism Commission to report on HHS Committee Thursday 4/8/2010 1:30 pm – LBS-A

ACTION/MOTION/CONSENSUS

3/22/10 meeting notes approved

Letters of position for several bills – SB10-153, SB10-76

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike Hoover – Testify on SB10-175 and SB10-87 as scheduled - TBD

Mike McCarty – Testify on SB10-175, Contact Imagine to find out what mill levy funding is being spent on and contact Mike White for possible interest on the DDC Report on April 5, 2010 Attend and report if necessary at the Autism Commission Report on Thursday April 8, 2010

Jim Vail – none

Ed George – Testify on SB 175, report on Mental Health actions. 

Marcia – Follow up on SB10-121 replacement resolution, SB10-002 follow up on pay and chase, follow up with Rep Primavera for meeting attendance at a PP/L meeting in April, letter to Rep Ferrandino and Senator White supporting amended HB10-1379, research DD Waiver for Early Intervention Programs, provide resource information for Employer letter… report on all 4/5/2010.

Sheryle – Attend hearings, testify, communicate with all, follow up on 5 bills assigned and write letters of position on several legislative bills. Review SB10-175 and advise through an inquiry and fact sheet, write letter endorsing resolution for May as Mental Health Month, follow up on DD Waiver for Early Intervention Programs, Research summer training/education related to “Advanced Directives.” Further research NH annual % increase cap, write letter of amended support, and prepare a position paper for bills the PP/L is currently following- report on all 4/5/2010.

Those in attendance, Mike McCarty, Mike Hoover, Ed George, Jim Vail. 

Excused : Representative Frangas

Absent  Katie Granger

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member – Donna Downing

Meeting adjourned at 1:00 P.M.

Next meeting – April 5, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing room #0107.

Meeting Notes and Activities
Date: March 15, 2010
Submitted by Sheryle Hutter

  1. Meeting Notes – March 1, and March 8, 2010           All                   
  2. 2010 Legislative Update                                          Sheryle Hutter '
  3. Committee Responsibility - Update                          All
  4. Health Update                                                        All
  5. Employment Update                                               All                                                            
  6. Proposed 2010 Action                                             All
  7. New business                                                         All
  8. Old business                                                          All

 

Members:  Mike McCarty – Chairperson, Katie Grange, Julie Farrar, Mike Hoover, Ed George, Jim Vail and Representative Jerry Frangas

The CDDC PP/L committee meeting was brought to order at 11: 15 A.M. by Chairman Mike McCarty

A quorum was present for voting items.

1.       March 1, 2010 and March 8, 2010 meeting notes are approved.

2.       AGENDA ITEM DISCUSSION:

Legislative Update:

Marcia Tewell reports that SB10-121 “Developmental Disabilities and Autism Oversight Committee and Task Force” has been Postponed Indefinitely and will be replaced with another bill identifying the role of the Council in implementation of Task Force Coordination and Advisory Committee. More information to come later in the week

SB10-02 Medical Ins. Coverage…Will testify before House Committee and request further amendment of this bill to include all ages and disabilities.

HB10-1025 –Colorado Medical Treatment Decision Act. This bill amends the Act and conditions for the “Living Will” Growing concern over the content of this bill to include PVS (Persistent Vegetative State) as a condition, as well as other replacement language, the current definition of “Terminal”, and issues impacting persons with developmental disabilities. This has already passed through the House, Senate Committee and is to heard on 2nd  reading in the Senate this week. The PP/L Committee will write a letter to the full Senate opposing the bill. Marcia and Sheryle will further investigate and prepare a letter of Opposition to be submitted to the full Senate on Tuesday 3/16, 2010. Mike Hoover and Mike McCarty will write personal letters of opposition  

NHP – Mike McCarty reports that ADAPT is pursuing elimination of the annual rate increase for nursing homes…Mike to speak with Dawn Russell to get more details. Sheryle reports that with major rate increases for Nursing Homes due to the Nursing Home Provider Fee Program Colorado may face non compliance with federal restrictions, Sheryle and Marcia to research. 

County Mill Levy DD FMAP – DHS/HCPF have now posted the Q & A’s, Technical Assistance Guide, and letter to counties on the HCPF website. The link is: http://www.colorado.gov/cs/Satellite/HCPF/HCPF/1219400774885  REMINDER – The legislature/community meeting held 3/2/2010 4-5 pm Capitol Basement Mtg. Room #109

was very productive and we will be moving forward to contact county commissioners and research possibilities. May look at a pilot program to test the waters. CDDC and PP/L will support forward movement and Marna is to monitor as representative of the council.

Family Care Giver – Nothing new, however, will continue to monitor implementation plans.

Nothing About Us Without Us. – SB10-87 SOS authority for “Volunteer Lobbying” amended to give volunteer lobbyists the opportunity to register with either the Capitol Staff or the Secretary of States Office (if registering with the SOS monthly reporting is required). Even with the amendment, there is concern that revision of the law might cause confusion for some people and strongly restrain volunteer lobbying and the disability community’s opportunity for a voice in decision making. Will recommend that people register at the capitol to reduce confusion. Bill passes out of Appropriations and is scheduled for the Senate Committee As a Whole.

2.       Committee Responsibility Update –

Mike McCarty, He has not yet made contact with “Imagine” or contact with a potential council nominee, however, still trying, will report on March 22, 2010. Participated in the St. Patrick’s Day Parade – promoting awareness for the 20th Anniversary of ADA and CCDC.

Mike Hoover –Mike communicated with Jack and Jack will attend the next Council Meeting.

Jim Vail – Participated in the St. Patrick’s Day Parade – promoting awareness for the 20th Anniversary of ADA and CCDC.

Marcia – Followed up on SB10-121, will represent the Council on the “Conflict of Interest” Task Force and will be reporting in the future.

Sheryle – reports that the 2010 session schedule is on overload and bills are being introduced that will be critical to the DD community. Completed DRAFT of Employer letter.

4.  Healthcare Update – Following the many Legislative Bills that will impact healthcare in Colorado

5.       Employment – Everyone will track job bills. A DRAFT of the Employer letter to organization/companies new to Colorado is presented …CDDC will finalize the letter and begin to notify them of ADA Hiring Rules.

6.   2010 Legislative Action.

      3-5 new bills to be pursued by Sheryle during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Defeated on first reading

HB10-1019 – Frangas - Disability Parking Bill – Passed committee and sent to Appropriations.            Support and testify

HB10-1152 - Frangas - Civil Rights, enforcement of ADA  - Passed out of House Committee and sent to Appropriations. Support and testify

SB 10-002 – Steadman – Support and lead lobby team for amendments.

HB10-1025 Colorado Medical Treatment Decision Act – Strongly oppose with full Senate.

SB10-153 -Behavioral Health Screening and Efficacy – Review and advise.

CDDC is providing support or opposition to several other bills with a letter.

SB 10-126 “Pharmaceutical Transparency Act” Support

Follow up for position

HB10-1213 – Support with further amendments, our concerns being considered.

7.       New Business – Research a DD Waiver for Early Intervention Programs.

Next meeting of “COI” (Conflict of Interest) Task Force will be March 25, 2010 10-3 pm and the Daniels Foundation. 

8.       Old Business- St. Patrick’s Day Float – Mike McCarty and Jim Vail participated with the Float Team as we kicked of the year long celebration of the 20th Anniversary of ADA (Americans with Disabilities) and CCDC (Colorado Cross Disability Coalition) March 13, 2010.  Publicize for participation. Pursue yearlong parade opportunities and advertise early for stronger support.

ACTION/MOTION/CONSENSUS

3/1/10 & 3/8/10 meeting notes approved

Letters of position for several bills – Letter of opposition HB10-1025

DRAFT of Employee Letter

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike Hoover – Write letter to Senators – Opposing HB10-1025

Mike McCarty – Contact Imagine to find out what mill levy funding is being spent on and contact Mike White for possible interest on the DDC, Write personal letter to Senators Opposing HB10-1025, Speak with Dawn Russell for update on NHP. All to be done by March 22.

Jim Vail – none

Marcia –Follow up on SB10-121, DD Council responsibility with the new direction, Locate the State DD Audit and M&S Survey for presentation at the COI meeting March 25, 2010.Write letter of opposition to Senate on HB10-1025, Research a DD Waiver for Early Intervention Programs, provide resource information for Employer letter, report on all 3/22/2010.

Sheryle – Attend hearings, testify, communicate with all, follow up on 5 bills assigned, HB10-1025 – Write letter of opposition to Senate, contact Laura Hershey and NDY for further documentation on PVS and updated position on HB10-1025 , Research a DD Waiver for Early Intervention Programs, report on all 3/22/2010.

Those in attendance, Mike McCarty, Mike Hoover, Ed George. 

Excused : Representative Frangas

Absent  Katie Granger, Jim Vail

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member – Donna Downing

Meeting adjourned at 1:00 P.M.

Next meeting – March 22, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing room #0107.

 

Meeting Notes and Activities
Date: February 22, 2010 
Submitted by Sheryle Hutter

 

  1. Meeting Notes – Feb 8, 2010            All               
  1. 2010 Legislative Update                    Sheryle Hutter

3.      Committee Responsibility – Update      All 

4    Health Update                                All 

5.      Employment Update                    Bob Lawhead 

  1. Proposed 2010 Action                      All
  1. New business                                  All
  1. Old business                                    All

Members:  Mike McCarty – Chairperson, Bob Lawhead, Katherine Carroll, Katie Grange, Julie Farrar, Mike Hoover, Ed George, Jim Vail and Representative Jerry Frangas 

The CDDC PP/L committee meeting was brought to order at 11: 20 A.M. by Mike McCarty (by phone) 

A quorum was present for voting items. 

1.       The Feb 8, 2010 meeting notes were approved as distributed  

2.       AGENDA ITEM DISCUSSION: 

3.       Legislative Update: 

Nursing Home Parity – Marcia received a call from Tim Thornton, however no information left so a report will be forthcoming at the 3/1/2010  meeting. 

County Mill Levy DD FMAP – DHS/HCPF have now posted the Q & A’s, Technical Assistance Guide, and letter to counties on the HCPF website. The link is: http://www.colorado.gov/cs/Satellite/HCPF/HCPF/1219400774885  A community meeting is scheduled for 3/2/2010 4-5 pm Capitol Basement Mtg. Room #109 

Family Care Giver – Monitoring, however, nothing new to report.  

Nothing About Us Without Us. – SB10-87 SOS authority for “Volunteer Lobbying” amended to give volunteer lobbyists the opportunity to register with either the Capitol Staff or the Secretary of States Office (if registering with the SOS monthly reporting is required). Even with the amendment, there is concern that revision of the law might cause confusion for some people and strongly restrain volunteer lobbying and the disability community’s opportunity for a voice in decision making. Will recommend that people register at the capitol to reduce confusion.  

Thanks to Rep Gerou and Senator Newell for bringing SB10-014 Disability Awareness Day forward, sadly it was introduced on Feb 16, 2010 and Feb 17, 2010 was declared and celebrated. Too bad the DDC was not notified of the scheduling to allow for our attendance. We will pursue having the Council included in future resolution. 

Congrats to Mike Hoover, Ed George, and Jim Vail as on 2/22/2010 they all three became registered, card carrying members of the “Volunteer Lobby”  

4.       Committee Responsibility Update –

Mike McCarty, was not able to make contacts with “Imagine” and contact with a potential council nominee.

Mike Hoover – no report on communication with Jack.

Sheryle – reports that although she notified Senator Keller regarding a resolution to support Disability Awareness Day, a resolution was presented by other legislators and Feb 17, 2010 was declared and celebrated. Following bills and making contact with legislators.  

5.       Healthcare Update – Following the many Legislative Bills that will impact healthcare in Colorado

6.       Employment – Following the elimination of varied “tax credits” and how this might impact jobs for the disabled.

7.       2010 Legislative Action.

      3-5 new bills to be pursued by Sheryle during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Defeated on  first reading…thank you Mike Hoover for important testimony.

HB10-1010 – Confusion over this bill, does it impact issues related to case management and services?

      HB10-1019 – Frangas - Disability Parking Bill – Support and testify

      HB10-1152 - Frangas - Civil Rights, enforcement of ADA  - Support and testify

SB 10-002 –  Steadman – Support and lead lobby team 

CDDC is providing support or opposition to several other bills with a letter.

SB 10-76 “Denial of Insurance Claims”

SB 10-121 “Developmental Disabilities and Autism Oversight Committee and Task Force”

HB 10-1137 “People First Language”

SB 10-126 “Pharmaceutical Transparency Act” 

Follow up for position on HB10-1213 and HB10-1025

HB10-1213 – pursue further amendments

HB10-1025 – Meeting with Laura Hershey and Senator Newell to discuss concerns about this proposed legislation.

8.       New Business

9.       Old Business- Katherine Carroll resigns the PP/L Committee due to other commitment on Monday’s. Thanks to Katherine for supporting the committee as long as possible.

ACTION/MOTION/CONSENSUS

2/8/10 meeting notes approved with modification

Letters of position for several bills 

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike Hoover – will testify on SB10-121

Mike McCarty – Contact Imagine to find out what mill levy funding is being spent on and contact Mike White for possible interest on the DDC, both to be done by March 1, 2010. Testify on SB10-002 2/25/10

Ed George – Testify on SB10-002 2/25/10

Marcia – follow up with Tim Thornton, report on 3/1/10. Investigate number of SEP’s in state by March 1, 2010

Sheryle – Attend hearings, testify, communicate with all, follow up on 3 bills assigned and write a CDDC Write letters of position on bills that the CDDC will support or oppose however not strongly lobby.  HB10-1010 – Confusion over this bill, does it impact issues related to case management and services? Report at the March 1, 2010 mtg. 

Those in attendance, Mike McCarty (by phone) Mike Hoover, Jim Vail, Ed George. 

Excused : Representative Frangas, Bob Lawhead, Julie Farrar

Absent  Katie Grange

Staff Present: Marcia Tewell, Sheryle Hutter 

Guests:  Community Member – Donna Downing and Carole Meredith ARC Arapahoe 

Meeting adjourned at 1:00 P.M.

Next meeting – March 1,  2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing room #0107.

 

Meeting Notes and Activities
 
Date: January 25, 2010

Submitted by Sheryle Hutter

 

1.       Meeting Notes – Dec 7, 2009, Jan 4 and Jan 11, 2010     All 

2.       2009 Summer/Fall Legislative Update                           Sheryle Hutter, Marcia Tewell 

3.       Committee Responsibility – Update                              All 

4.       Health Update                                                            Irene Aguilar 

5.       Employment Update                                                  Bob Lawhead  

6.       Proposed 2010 Action                                                 All 

7.       New business                                                            All 

8.       Old business                                                            All

Members:  Mike McCarty – Chairperson, Irene Aguilar, Bob Lawhead,  Katherine Carroll, Katie Grange, Julie Farrar, Mike Hoover, Ed George, and Representative Jerry Frangas

The CDDC PP/L committee meeting was brought to order at 11:05 A.M. by Marcia Tewell  

A quorum was present for voting items. 

Dec 7, 2009, Jan 4, and Jan 11, 2010 meeting notes are to be emailed to committee members for approval. Members are asked to respond to the email ensuring approval of the notes. 

AGENDA ITEM DISCUSSION: 

Legislative Update:

Marcia reports that the ARC LTD proposed bill has been pulled for the 2010 session.  

Nursing Home Parity – Rep. Ferrandino will sponsor a bill for home health care provider fee, there is concern as to the restricted information and involvement with the bill development and how CDASS could be effected by this type of bill.  Marcia will contact Tim Thornton for moreinformation.  

It is still unknown whether there is a sponsor for a bill that would resend current law that mandates annual rate increases for Nursing Homes  

County Mill Levy DD FMAP – The DHS/HCPF has provided the Q & A, however, has requested a new deadline for a final “Technical Assistance Guide”, and posting of the letter to counties by January 29, 2010. DHS and HCPF are both supporting pursuit of the funding.  

Family Care Giver – Implementation that was planned for this month has not happened. Marcia and Sheryle will follow up on implementation date with the DDD representative that will be at the DDC meeting on Jan 27, 2010.  

      Federal Audit compliance - Providers to separate case management and service by 2012? 

Julie Farrar reported that many Medicaid allocation reductions are far exceeding 2.5%. Some clients are incurring 7-8% rather than the 2.5%. This issue is being pursued for correction with HCPF. 

JBC supplemental meeting…Two concerns surfaced during the Jan 22, 2010 hearing…

HCPF neglected to impose budget cuts on some programs in fall 2009, staff recommended that the cuts not be retroactive, however, imposed in March 2010.

HCPF neglected to make cuts to GF aligned with the Medicaid cuts, adjustments will be made, however the concern is whether the GF amount might have reduced the impact on consumers? Inquiry will be made of the JBC.

Committee Responsibility Update –

Marcia has not been in contact with Tim Thornton yet related to the NHP bills but will do so before next meeting. Bob Lawhead responded to absences in past couple of months due to involvement with projects, however, hopes to participate in committee meetings in the near future.  

Mike McCarty – Not in attendance 

Mike Hoover – Will work on responsibilities this week  

Sheryle – followed new bill introductions, attended hearings, and is following up. 

Healthcare Update – HCAC will continue to pursue healthcare reform. There are a number of healthcare related bills,

Dr. Aguilar suggests that we monitor the following:

SB10-76 Denial of Ins Claims

TBA – Healthcare claims, standardized healthcare claims forms

TBA – Sen. Foster and Senator Carroll may carry a public option bill for Colorado

HB10-1166 Kafalas – A bill to require insurance company clean up, simplification of language, and printed in 12 pt. font.  

Employment – No report 

2010 Legislative Action.

      3-5 new bills to be pursued during the 2010 Legislative Session

      HB10-1070 – Lock up of Mental Health Patients- Strongly Oppose

      Will pursue TLC position.         

      HB10-1019 – Frangas - Disability Parking Bill - Support

      TBA - Frangas - Civil Rights, enforcement of ADA  - Support 

CDDC will support or oppose other bills with a simple letter or position. (Template to be designed) 

New Business – Membership  - Due to family need Dr. Aguilar presented her resignation from the CDDC and the CDDC PP/L Committee. Dr. Aguilar will be greatly missed by the council and the PP/L Committee.  

An FYI – Mike McCarty has started a project to send wheelchairs to Haiti.  

Old Business –  

·         During the Jan 4, 2010 meeting, Katie Grange reported that a number of families are meeting on Jan 5, 2010 to review current programs and look toward improved services on the Western Slope. She agreed that they will watch and report in on transition of clients into community based programs due to the closure of the Regional Center in Grand Junction.  Katie was not present to report at the Jan 25, 2010 meeting and a report will be given when she is present.  

·         Stephanie Garcia is removed as a member of the CDDC PP/L and Ed George will join the PP/L Committee and apply for CDDC.  

ACTION/MOTION/CONSENSUS

No voting items 

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Marcia – contact Tim Thornton to follow up on the NHP bills and contact Randy Chapman – LCD for position on HB10-1070, by Feb 1, 2010.

Mike Hoover – Contact legislators about single payer and contact Jack Weiner for possible membership on the DDC by Feb 1, 2010 meeting. Testify in opposition to HB10-1070

Mike McCarty – Contact Imagine to find out what mill levy funding is being spent on and contact Mike White for possible interest on the DDC, both to be done by Jan 25, 2010.

Ed George – Attend new Legislative Network mtg. Mondays 9 am…

Sheryle – Attend hearings, follow up on 3 bills assigned and write a CDDC template for position on bills that the CDDC will not strongly lobby. 

Those in attendance: Mike Hoover, Julie Farrar, Ed George, Irene Aguilar

Excused : Bob Lawhead, Representative Frangas

Absent  Katie Grange, Katherine Carroll

Staff Present: Marcia Tewell, Sheryle Hutter 

Guests:  Community Member – Donna Downing 

Meeting adjourned at 1:00 P.M.

Next meeting – Feb 1, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms.           

Meeting Notes and Activities
Date: January 11, 2010
Submitted by Sheryle Hutter

 

1.       Meeting Notes – Dec 7, 2009 & Jan 4, 2010        All 

2.       2009 Summer/Fall Legislative Update                Sheryle Hutter 

3.       Committee Responsibility – Update                   All 

4.       Health Update                                                 Irene Aguilar 

5.       Employment Update                                        Bob Lawhead  

6.       Proposed 2010 Action                                      All 

7.       New business                                                  All 

8.       Old business                                                   All  

Members:  Mike McCarty – Chairperson, Irene Aguilar, Stephanie Garcia, Bob Lawhead,  Katherine Carroll, Katie Grange, Julie Farrar, Mike Hoover, Ed George, and Representative Jerry Frangas  

The CDDC PP/L committee meeting was brought to order at 11:05 A.M. by Chairman Mike McCarty  

A quorum was not present for voting items. 

Lacking a quorum, the Dec 7, 2009 and Jan 4, 2010 meeting notes are to be emailed to committee members for approval. 

AGENDA ITEM DISCUSSION: 

1.       Legislative Update:

a.      Marcia reported that DDC support for bills resulting from Summer Committees and Interim Studies will be reviewed to determine direction for 2010 Session  

b.      Nursing Home Parity – Rep. Ferrandino will sponsor a bill for home health care provider fee, there is concern as to how CDASS could be effected by this type of bill.  

c.      It is currently unknown whether they were able to find sponsorship for a  bill that would modify current law that mandates annual rate increases for Nursing Homes  

d.      County Mill Levy DD FMAP – The DHS/HCPF has requested a new deadline for answers to consumer questions, a final “Technical Assistance Guide”, and letter to counties by January 22, 2010. 

e.      Family Care Giver – Marcia reports that Barb Ramsey (DDD) shared that they have been piloting the program with 10 families in the Canyon City area and the program is somewhat successful, however pay and CDAS options are still being worked out. Barb also reported at the November 2009 DDC meeting that DHS/DDD would implement the program in Jan 2010.  

2.       Committee Update - None

3.       Healthcare Update – There are a number of healthcare related bills which the committee will review and provide direction as more are introduced.

4.       Employment – Limited information was shared with the committee related to the Sheltered Workshop Task Force report which will be public January 2010. And although the report is still confidential Marcia reported that “prevocational” and “supported employment” will be addressed and that the Task Force will recommend that there be “no billing for sheltered workshops” 

5.       Continuing action and new bills that might be pursued during the summer and fall:

Monitor JBC action and pursuit of Bills TBD 

New Business – Publicize and promote participation for the Legislative/Public Policy Committee meetings.  Carole Meredith shared information about the committee with P 2 P and the ARC’s 

Old Business – During the Jan 4, 2010 meeting, Katie Grange reported that a number of families are meeting on Jan 5, 2010 to review current programs and look toward improved services on the Western Slope. She agreed that they will watch and report in on transition of clients into community based programs due to the closure of the Regional Center in Grand Junction.  Katie was not present to report at the Jan 11, 2010 meeting and a report will be given when she is present.  

Committee recommendation is to remove Stephanie Garcia from the member list as she has not attended in person or by phone in nearly a year. It was also recommended that we ask Ed George to join as a member and that we pursue more members for the PP/L Committee and CDDC.  

ACTION/MOTION/CONSENSUS

No quorum, membership and other voting items will be tabled until the Jan 25, 2010 meeting

 COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Marcia – contact Tim Thornton to follow up on the NHP bills and contact Bob Lawhead to inquire as to his PP/L committee absenteeism, and contact Ed George to join the PP/L committee…all to be accomplished by Jan 25, 2010 meeting

Mike Hoover – Contact legislators about single payer and contact Jack Weiner for possible membership on the DDC by Jan 25, 2010 meeting.

Mike McCarty – Contact Imagine to find out what mill levy funding is being spent on and contact Mike White for possible interest on the DDC, both to be done by Jan 25, 2010.

Sheryle – Follow introduction of new bills and report to committee.

Those in attendance: Mike Hoover and Mike McCarty

Excused : Katherine Carroll, Representative Frangas

Absent : Stephanie Garcia, Bob Lawhead, Katie Grange, Julie Farrar

Staff Present: Marcia Tewell, Sheryle Hutter 

Guests:  Community Member – Donna Downing 

Meeting adjourned at 12:50 P.M.

Next meeting – Jan 25, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms.

Meeting Notes and Activities
Date: January 4, 2010 

Submitted by Sheryle Hutter

 

1.       Meeting Notes – approval update        All                                           

2.       2009 Summer Legislative Update        Sheryle Hutter 

3.       Autism Society Update                      Carol Meredith 

4.       Health Update                                   Irene Aguilar 

5.       Employment Update                          Bob Lawhead                                                           

6.       Proposed 2010 Action                       All 

7.       New business                                  All 

8.       Old business                                   All

The CDDC PP/L committee meeting was brought to order at 11:10 A.M. by Marcia Tewell, Mike McCarty arrived later. 

A quorum was not present for voting items. 

Recording that Sept 14, Oct 5, and Nov 2, 2009 meeting notes were approved via email communication. December 2009 meeting notes will be approved at Jan 11, 2010 

AGENDA ITEM DISCUSSION: 

  1. Legislative Update:

Marcia reported that DDC support for bills resulting from Summer Committees and Interim Studies will be reviewed to determine direction for 2010 Session  

Nursing Home Parity - Current action for Nursing Home Parity Bills was discussed at the December 22, 2010 meeting with Rep. Ferrandino. Although previously reported that rule change or process modification might replace the need for legislation it was determined that legislation is necessary. So 2 bills will be written, led by the Independent Living Center Coalition and Kathy Oatis that will:

·         Modify current law that mandates annual rate increases for Nursing Homes – Sponsor TBD

·         Write a new bill for Home Healthcare Providers Fee – Sponsor – Rep. Ferrandino 

County Mill Levy DD FMAP – The DHS/HCPF are to have answers to consumer questions and a Draft of an “Instruction Guide” for counties by January 8, 2010. 

Family Care Giver – Marcia reports that Barb Ramsey (DDD) shared that they have been piloting the program with 10 families in the Canyon City area and program is somewhat successful, however pay and CDAS options are still being worked out. Barb also reported at the November 2009 DDC meeting that DHS/DDD would implement the program in Jan 2010.  

  1. Autism Update – Carol Meredith – Arapahoe County ARC reported that aligning with the Autism Commissions 10 year strategic plan they are researching and garnering support for legislation that would create a Legislative oversight committee similar to the committee described in mental health statute 18-1.9-103. Legislative/Public Policy Committee will further discuss support for the bill with a quorum present. 

  2. Healthcare Update – Irene was absent, however Sheryle shared an article written by Irene giving an update on the national Healthcare Reform effort. There are a number of healthcare bills scheduled for introduction during the 2010 Colorado Legislative Session, however, forward movement may be impacted by national level action. 
  1.  Employment – Marcia shared that although Mr. Bruno reported to the JBC in December 2009, the Sheltered Workshop Task Force report will not be public until January 2010. And although the report is still confidential she was able to report that “prevocational” and “supported employment” will be addressed and that the Task Force will recommend that there be “no billing for sheltered workshops”   
  1. Continuing action and new bills that might be pursued during the summer and fall:

Monitor JBC action and pursuit of Bills TBD 

  1. New Business –  Publicize and promote participation  for the Legislative/Public Policy Committee meetings.  Carole Meredith will publicize to P 2 P and the ARC’s

Katie Grange reported that a number of families are meeting on Jan 5, 2010 to review current programs and look toward improved services on the Western Slope. She agreed that they will watch and report in on transition of clients into community based programs due to the closure of the Regional Center in Grand Junction. 

  1. Old Business – Mike Hoover and Donna Downing report that Club SamarKahn sponsored a great fundraiser (a virtual sale) that netted enough profit to cover the cost of the AUTCOM website for 7 months.  A huge “thank you” to Club SamarKahn, Mike Hoover, and Donna Downing for a great success.

ACTION/MOTION/CONSENSUS

No quorum, membership and other voting items will be tabled until the Jan 11, 2010 meeting

 COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

 No assignments for Jan 11, 2010 

Those in attendance: Katie Grange, Mike Hoover and Mike McCarty

Excused :Irene Aguilar, Katherine Carroll, Representative Frangas

Absent : Stephanie Garcia, Bob Lawhead

Staff Present: Marcia Tewell, Sheryle Hutter

 Guests:  Community Member – Carole Meredith and Donna Downing

 Meeting adjourned at 1:00 P.M.

 Next meeting – Jan 11, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms. 

Meeting Notes and Activities
Date: December 7, 2009   

ISSUE:

1.             Approval of 9/14/09 & 10/5/09 Meeting Notes     All    

2.             2009 Legislative Update                                   Sheryle Hutter 

3.             Review CDDC Goals                                         Marcia Tewell 

4.             Health Update                                                 Irene Aguilar 

5.             Employment Update                                        Bob Lawhead 

6.             Proposed 2010 Action                                     All 

7.             New business                                                All 

8.             Old business                                                 All

 The CDDC PP/L committee meeting was brought to order at 11:10 A.M. by Marcia Tewell, Mike McCarty joined by phone. 

A quorum was not present for voting items. 

Sept 14, Oct 5, and Nov 2, 2009 meeting notes were tabled in the absence of a quorum. Marcia will review and send minutes via email for committee approval 

AGENDA ITEM DISCUSSION: 

  1. Legislative Update:

A Bill Chart resulting from Summer Committees and Interim Studies was shared for committee review and direction for 2010 Session  

Committee members present discussed the Nursing Home Parity Bill status and Marcia shared information related to an upcoming meeting with Rep. Ferrandino on Dec. 22, 2009.  Information related to future action will be shared. 

Update on the County Mill Levy DD FMAP – DHS/HCPF are to have answers to consumer questions and a Draft of an “Instruction Guide” for counties by mid December 2009.

  1. Healthcare Update – Irene was absent, however the Healthcare Task Force is moving forward with a number of bills for the 2010 Session.
  2.  Employment – Bob Lawhead was absent and will report at the next meeting.

  3. Continuing action and new bills that might be pursued during the summer and fall:
    1. Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us. All committees seem to be looking more strongly at inclusion.  More people must consider applying for one of the many boards, commissions, or committees that have current openings for community members and consumers. (See attached a list of Governor’s Boards and Commissions that have current vacancies) 
    1. Identify CDDC involvement in pursuing parity between Home Health Providers and Nursing Homes. Next meeting TBA
    1. Review new bills for 2010 Session 
  1.  New Business – Marcia reports that she, Carole Meredith and Marijo Rymer are discussing new legislation to increase communication, eliminate black holes and development of an oversight committee which would include several legislators. 

  2. Old Business - 

ACTION/MOTION/CONSENSUS

No quorum, membership and other voting items will be tabled until the Jan 4, 2010 meeting 

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

 No assignments for December 2009 

Those in attendance: Mike McCarty

Excused : Bob Lawhead, Irene Aguilar, Katherine Carroll, Representative Frangas

Absent : Stephanie Garcia, Katie Grange, Mike Hoover 

Staff Present: Marcia Tewell, Sheryle Hutter 

Guests:  Community Member –  None 

Meeting adjourned at 12:45 pm. 

Next meeting – Jan 4, 2010  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms.           

Meeting Notes and Activities
Date: November 2, 2009        

ISSUE:

1.       Approval of 9/14/09 & 10/5/09 Meeting Notes     All   

2.       2009 Legislative Update                                   Sheryle Hutter

3.       Update and Future Action on NHP                    Marcia Tewell

4.       Health Update                                                 Irene Aguilar

5.       Employment Update                                        Bob Lawhead      

6.       Proposed 2010 Action                                      All 

7.       New business – Committee members               All 

8.       Old business                                                   All

The CDDC PP/L committee meeting was brought to order at 11:10 A.M. by Marcia Tewell in Mike McCarty absence.

A quorum was not present for voting items.

Approval of Sept 14 and October 5, 2009 meeting notes was tabled absent a quorum.

AGENDA ITEM DISCUSSION:

1.       Legislative Update:

a.      Summer Action…Committees and Interim Studies are nearly complete Sheryle has actively attended meetings for 5 different committees.

2.       Committee members present discussed the Nursing Home Parity Bill status and Marcia and Sheryle will inquire as to the outcome of the sub committee meeting with HCPF and intended pursuit. CDDC will not pursue any legislative bills at this time as investigation of rule options are being considered, more to come at the next meeting.

3.       Healthcare Update – Irene was absent, however the Healthcare Task Force is moving forward with a number of bills for the 2010 Session.

4.        Employment – Bob Lawhead was absent and will report on the CAPSE Conference at the next meeting.  Sheryle attended the conference, however, will defer to Bob for the update. 

5.       Continuing action and new bills that might be pursued during the summer and fall:

a.      Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us. All committees seem to be looking more strongly at inclusion.  More people must consider applying for one of the many boards, commissions, or committees that have current openings for community members and consumers. (See attached a list of Governor’s Boards and Commissions that have current vacancies)

b.      Identify CDDC involvement in pursuing parity between Home Health Providers and Nursing Homes. Next meeting TBA

c.      Support the writing of a bill for Healthcare Reform. Dr. Aguilar reports that Rep. Kefalas is convening legislators for a Healthcare Reform bill. He is talking with Colorado Senators to garner support.

6.       Current activities to support

7.       Nothing About Us without Us – With the passage of HB09-1281 - Disability community participation on Governor’s Boards and Commissions, as well as committees and sub committees is being more strongly supported and pursed. It is important for everyone to review the vacancies and if interested to apply as having input in the decision making process is critical to our future.

8.        Status of HB09-1001 and HB09-1105 Tax credits for employers, only 1 company has been approved for the large business tax credit, however, many are apparently applying

9.       Healthcare Reform continues to take priority in most discussions, with many activities planned during the coming months. Both state and national efforts are attempting to cover the needs of all America.

10.   New Business – No action on a publicity team

ACTION/MOTION/CONSENSUS

No quorum, membership and other voting items will be tabled until the November 2, 2009 meeting

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

No assignments for November 2009

Those in attendance: Katherine Carol, Julie Farrar

Excused : Mike McCarty, Irene Aguilar, Representative Frangas

Absent : Stephanie Garcia, Katie, Bob Lawhead

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member –  Ed George

Thank you for joining us and sharing your very important input.

Meeting adjourned at 1:00 pm.

Next meeting – December 7, 2009  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms.

Meeting Notes and Activities
Date: October 5, 2009

ISSUE:

  1. Approval of 9/14/09 Meeting Notes            All

2.   2009 Legislative Update                          Sheryl

3.   Update and Future Action on SLS            Marcia

  1. Health update                                           Irene
  2. Employment update                                  B. Lawhead
  3. Proposed 2010 Action                               Sheryle
  4. New business                                          All
  5. Old business                                           All

 The CDDC PP/L committee meeting was brought to order at 2:10 P.M. by Marcia Tewell in Mike McCarty absence.

A quorum was not present for voting items.

Approval of Sept 14, 2009 meeting notes was tabled absent a quorum.

AGENDA ITEM DISCUSSION:

1. Legislative Update:

Summer Action…Committees and Interim Studies are nearly complete and it appears that at least 8 bills will come out of each interim committee.

2. SLS (Supported Living Service) – Marcia facilitated a discussion between the PP/L Committee and representatives from ARC and P2P. New DDD rule for SLS promotes a far more restrictive environment, which may be a violation of Medicaid rule. It was suggested that we investigate the possibility of using a social network to contact legislators, further that due to the Medicaid Network Adequacy problems that there might be need for a group appeal. Due to new rule, many individuals will be left home unattended while family members work, or family members will be forced to give up their jobs. CCDC, DDC attended a meeting with Rep. DeGette to share concerns about the recent changes.

3. Healthcare Update – Irene was absent, however it was reported that the Healthcare Task Force is moving forward with a number of bills for the 2010 Session. More to come for the November 2009 PP/L meeting.

4. Employment – Bob Lawhead was absent, however, a reminder of The CAPSE Conference scheduled for October 22, 2009. Bob will be sending conference information out in the next few days and since this conference is in conflict with the CDDC Annual Retreat Sheryle will attend and report to the committee. 

5. Continuing action and new bills that might be pursued during the summer and fall:

    1. Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us. All committees seem to be looking more strongly at inclusion.  More people must consider applying for one of the many boards, commissions, or committees that have current openings for community members and consumers. (See attached a list of Governor’s Boards and Commissions that have current vacancies)
    2. Pursue methods or write two new bills that would result in parity between Home Health Providers and Nursing Homes. Next meeting TBA
    1. Support the writing of a bill for Healthcare Reform. Dr. Aguilar reports that Rep. Kefalas is convening legislators for a Healthcare Reform bill. He is talking with Colorado Senators to garner support.

6. Current activities to support

·         Nothing About Us without Us – With the passage of HB09-1281 - Disability community participation on Governor’s Boards and Commissions, as well as committees and sub committees is being more strongly supported and pursed. It is important for everyone to review the vacancies and if interested to apply as having input in the decision making process is critical to our future. Ed George handed out a catalog that he created that gives definition and vacancy information for current openings on the Governor’s Boards and Commissions. Thanks Ed.

·          Status of HB09-1001 and HB09-1105 Tax credits for employers, DDC will take a proactive stance supported by several other groups to notify new and expanding companies of hiring practice that comply with ADA and will further provide resources.

·         Nursing Home Parity – A meeting is scheduled for October 26, 2009 between HCPF and the NHP Coalition to discuss possible legislation to promote equity between Nursing Homes and Home HealthCare Providers.

·         Healthcare Reform continues to take priority in most discussions, with many activities planned during the coming months. Both state and national efforts are attempting to cover the needs of all America.

7. New Business – Need to follow up on prior suggestion that we consider a publicity team for communication when it is necessary to garner input to impact legislative issues.

The CDDC Retreat is scheduled for October 22-23, 2009

8. Old Business  - Reminder to register for the CDDC Learning from each Other – Things We Share, 2nd Annual Cultural Competence and Responsiveness Conference. October 9-10, 2009 at the Summit Conference and Event Center.

Family Caregiver Update- there were varied reports on action being pursued, however, no official report from DDD.

Mike Hoover reported on his attendance at the Autism Conference and will provide more information for the meeting notes.

ACTION/MOTION/CONSENSUS

No quorum, membership and other voting items will be tabled until the November 2, 2009 meeting

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

No assignments for November 2009

Those in attendance: Mike Hoover, Katie Grange (new member),

Excused : Mike McCarty, Katherine Carol (new member), Irene Aguilar, Bob Lawhead, Representative Frangas

Absent : Julie Farrar, Stephanie Garcia,

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member – Diane McNamara, Carole Meredith, Donna Downing, Ed George, Jeremy Schupbach

Thank you for joining us and sharing your very important input.

Meeting adjourned at 3:50 pm.

Next meeting – November 2, 2009  11:00 A.M - 1:00 P.M. Colorado State Capitol – basement hearing rooms.

 

Meeting Notes and Activities
Date: September 14, 2009

ISSUE:

1.       Approval of 8/10/09 Meeting Notes              All

2.       Committee Responsibility Update               All 

3.       2009 Legislative Update                             Sheryle

4.       Health update                                           Irene

5.       Employment update                                 B. Lawhead

6.       Proposed 2010 Action                              All

7.       New business                                          All

8.       Old business                                          All

The CDDC PP/L committee meeting was brought to order at 10:15 a.m. by Marcia Tewell in Mike McCarty absence.

A quorum was not present for voting items.

 1.       August 10, 2009 meeting notes were approved as read.

AGENDA ITEM DISCUSSION:

  1. All committee responsibilities were pursued and most completed, Marcia is awaiting scheduling of  a meeting date with Dr. Wadhwa (HCPF) for the Nursing Home Parity Coalition. Sheryle is attempting to set a meeting with Rep. Pommer to gather support for the NHP 2010 Legislative Bills.
  1. Legislative Update:

Summer Action…Committees and Interim Studies are underway.

·         SB09-1293 Hospital Provider Fee bill – Accountability Act. Menda Warne is a member of the committee. The advisory committee is meeting every two weeks and two sub committees are forming to further research Medicaid Buy In (see update attached) and Childless Adults (no information from this sub committee to date) It is advisable that we have strong participation at these meetings for networking and input.

·         SLS – Issues are surfacing daily with consumers reporting cuts and denial of benefits. CCDC is still asking for stories to determine future action. The Westword article published in late August clearly depicted the impact that SLS reduction will have on the disability community.

·         Marcia updated on the Florida story, although there will be changes from the action, the impact is not as great as the community had hoped.

·         See Legislative Update attached for more information on Big Business Tax Credit Impact,  Interim Committees, Budget Cut Issues, Mil Levy Match, and Medicaid Buy In.

4.      Healthcare Update – Healthcare for All Colorado has been actively promoting awareness for healthcare reform.  “The Mad Doctors” for Healthcare Reform conducted a Healthcare Reform Rally on September 14, 2009 at noon on the West steps of the Capitol followed by a picnic in the evening. The Doctors are headed for D.C.

  1. Employment – Bob Lawhead reported that in 1994-1995 50% of DD were employed the 2009 percentage has dropped to 23-24%.

·       The Alliance for Participation- National is suggesting a 5-10 year phase out of sub minimum wage, Harkin Iowa is pursuing a bill to cut sub minimum wage with need focused on the Turkey Farm report. Bob and Marcia recommend that CDDC become more strongly involved with the AFP.

·       The CAPSE Conference is scheduled for October 22, 2009. Bob will be sending conference information out in the next few days.

·       The SB08-05 Pilot program is implementing, however, Bob reports that with the budget reduction the program has been modified and he doubts DVR will be able to report the success they had originally hoped to attain.,

6. The four new bills to be pursued during the summer and fall will be

    1. Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us. All committees seem to be looking more strongly at inclusion.  More people must consider applying for one of the many boards, commissions, or committees that have current openings for community members and consumers. (See attached a list of Governor’s Boards and Commissions that have current vacancies)
    2. Pursue methods and write two new bills that would result in parity between Home Health Providers and Nursing Homes. Next meeting TBA
    1. Support the writing of a bill for Healthcare Reform. Dr. Aguilar reports that Rep. Kefalas is convening legislators for a Healthcare Reform bill. He is talking with Colorado Senators to garner support.

7.       New Business - Marcia suggested that we consider a publicity team for communication when it is necessary to garner input to impact legislative issues.

The CDDC Retreat is scheduled for October 22-23, 2009

8.       Old Business  - Reminder to register for the CDDC Learning from each Other – Things We Share, 2nd Annual Cultural Competence and Responsiveness Conference. October 9-10, 2009 at the Summit Conference and Event Center.

ACTION/MOTION/CONSENSUS

No voting items

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Recruitment for PP/L committee members- Marcia will contact Katherine Carroll, Rebecca Lee, Katie, Nita Wagner. Sheryle will recruit Dale and Gerrie Frohne.

Mike Hoover will contact Imagine to gather information for mil levy funding provided to Imagine during 2007-2009.

Those in attendance: Mike Hoover, Bob Lawhead

Excused : Representative Frangus

Absent : Julie Farrar, Mike McCarty, Stephanie Garcia,  and Menda Warne

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member - Donna Downing and Ed George

Thank you for joining us and sharing your very important input.

Next meeting – October 5, 2009 * 2:00 – 4:00 pm Colorado State Capitol – basement hearing rooms.

Meeting adjourned at 12:15 pm.

Meeting Activities
August 10, 2009

ISSUE:

  1. Approval of 7/6/09 Meeting Notes     All
  2. Committee Responsibility Update    All       
  3. 2009 Legislative Update                  Sheryle
  4. Health update                                 Irene
  5. Employment update                        B. Lawhead
  6. Proposed 2010 Action                     All
  7. New business                                 All
  8. Old business                                  All

_______________________________________________________________________________________

The CDDC PP/L committee meeting was brought to order at 11:45 a.m. by chairman Mike McCarty.

A quorum was present for voting items.

1.       July 6, 2009 meeting notes were approved as read.

AGENDA ITEM DISCUSSION:

2.       All committee responsibilities were pursued and most completed, Marcia is awaiting answers to questions ask of HCPF and Mike McCarty will further pursue communication with Rep Pommer.

3.       Legislative Update:

Summer Action…Committees and Interim Studies are underway.  

·         SB09-1293 Hospital Provider Fee bill – Accountability Act. Menda Warne is a member of the committee, however, reports that the chair is reluctant to address her questions and that he has stated that there will be no opportunity for public input during committee meetings. The committee suggests a letter to Director Heneberry to request that public input be included on the agendas. The advisory committee is meeting every two weeks and two sub committees are forming to further research Medicaid Buy In (first date rescheduled) and Childless Adults, dates have not yet been determined. It is advisable that we have strong participation at these meetings for networking and input.

·         SLS – Issues are surfacing daily with consumers reporting cuts and denial of benefits. The committee requests the members submit stories to CCDC for review and inclusion with future action. Westword interviewed CCDC and Sheryle representing DDC. The reporter laura.bond@westword.com is asking for storiesand publication is scheduled for September 2009

·         Economic Opportunity and Poverty Reduction – Disability Inclusion..This committee will actively study EO/PR for the next 5 years. DDC testimony ask for inclusion of the disability community.  Sub committees are forming and it is important that there be participation from the disability community…sub committees will be focused on Housing and Utilities; Job Creation; Access and Public Benefits; Scope of Problem; and Poverty Education. Contact Judy Hall at 303-573-5669 Ext 317 to apply for one of the sub committees.

·         Pinnacol Assurance Study- This committee is studying the Pinnacol Workman Compensation Plan and reviewing operations, premiums, policy holders, and injured workers claims and compensation. The committee is very interested in the experiences of individuals that are disabled, become employed and are then injured on the job. This is particularly important to us as a disability community when looking at the Medicaid Buy In program and increased number of disabled workers in the work force. Injured workers are ask to attend the Aug. 31, 2009 9am-4pm hearing to testify related to any experience they have had with Pinnacol Assurance and a workplace injury. It will be critical to monitor the work of the Medicaid Buy In sub committee to insure that disability is not considered a pre existing condition to work place injuries.

4.       Healthcare Update – Dr. Aguilar reported that the Healthcare for All Colorado board will be meeting on 8/15/09 to review the Federal Healthcare Reform bills to determine organization position. HCAC has not taken a position on the Obama Healthcare plan at this point, however, is asking that we contact our Colorado Congressional team to support HR 676 and the Kucinich Amendment which would allow state based innovation, including a single payer model. 

“The Mad Doctors” for Healthcare Reform will conduct a Healthcare Reform Rally on September 14, 2009 10:30 am on the West steps of the Capitol. DDC PP/L committee will join the rally. Dr. Aguilar reports that there may still be options for single payer within states.

U.S. Rep. DeGette reports that under the Obama plan there will be a provision for long term care, Medicare will remain in tact, and there will be a public option (what ever that means) and U.S. Rep. Perlmutter reports that the public plan will be something like Kaiser.

5.       Employment – Marcia Tewell reported on future employment efforts shared during her attendance at the National Developmental Disabilities Council Conference. Waivers are being rewritten to address the elimination of sheltered workshops and options that will replace the sheltered workshop environment. And the national council is writing a MIG grant to increase job availability for disabled workers. Marcia requested that Colorado be written into the grant and also encouraged that Project Search be listed as a successful model program.

6. The three new bills to be pursued during the summer and fall will be

a.      Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us. All committees seem to be looking more strongly at inclusion.  More people must consider applying for one of the many boards, commissions, or committees that have current openings for community members and consumers. Strong participation is the only way we can prove to the legislature that stronger language is necessary

b.       Pursue methods and write a new bill that would result in parity between Home Health Providers and Nursing Homes. Researching several possibilities, next meeting is Friday August 14, 2009 10 am – noon. Capitol basement hearing room 0111.

c.       Support the writing of a bill for Healthcare Reform. Dr. Aguilar reports that Rep. Kefalas is convening legislators for a Healthcare Reform bill. He is talking with Colorado Senators to garner support.

7.       New Business – Reminder to register for the CDDC Learning from each Other – Things We Share, 2nd Annual Cultural Competence and Responsiveness Conference. October 9-10, 2009 at the Summit Conference and Event Center.

8.       Old Business – Sharisa, thank you for serving on the PP/L committee..

_________________________________________________________________________________

ACTION/MOTION/CONSENSUS

The PP/L committee voted unanimously to support the 8/10/09 CCDC Press Release Titled: Colorado May Be Losing Millions in Federal Matching Funds-Administration Remains Silent-Refuses to Answer Questions.  This press release informs the public of the possible loss of millions of dollars of federal match funding that should be coming to Colorado as a match to County Mil Levy Funding for Developmental Disability Services.

_______________________________________________________________________________________

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Reminder for all committee members and council to follow up with the State Audit Committee to insure that recommendations in the CCB Audit Report are completed.

Reminder for all committee and council members to notify the Colorado Congressional Team to support HR676 and the Kucinich Amendment to HR 3200.

In coordination with the HB09-1001 big business employer tax credit, DDC will welcome all new and expanding businesses to Colorado, sharing information resources to comply with ADA hiring practice.

Per council approval, DDC will encourage members to provide stories, co-sponsor or provide a brief should CCDC purse legal action for civil/constitutional violations that result from the many changes to (SLS) Supported Living Services.  

Marcia and Sheryle will write a letter to the HB09-1293 Committee Chair asking that there be a public comment period included on the committee agenda.

Those in attendance: Mike McCarty, Mike Hoover, Irene Aguilar, Diane Rehner
Excused : Representative Frangas
Absent : Julie Farrar, Bob Lawhead, Stephanie Garcia,  and Menda Warne
Staff Present: Marcia Tewell, Sheryle Hutter
Guests:  Community Member - Donna Downing..

Thank you for joining us and sharing your very important input.

Next meeting – September 14, 2009 * 10:30am – 1 pm. Colorado State Capitol – basement hearing rooms.

*will meet on west steps of Capitol to join the “Mad Doctors for Healthcare Reform” rally at 10:30 am. and then convene the DDC PP/L meeting at 11:00 am

Meeting adjourned at 1:05 pm.

Meeting Notes and Activities
Date: July 6, 2009

_______________________________________________________________________________________

ISSUE:

  1. Approval of 6/1/09 Meeting Notes (All)  
  2. 2009 Legislative Update (Sheryle)  
  3. Health update  (Irene)
  4. Employment update  ( B. Lawhead)
  5. Proposed 2010 Action  (All)
  6. New business ( All)
  7. Old business  (All)

 _____________________________________________________________________________________

The CDDC L/PP committee meeting was brought to order at 11:15 a.m. by chairman Mike McCarty.

Did not have a quorum.

1. June 1, 2009 Meeting Notes were approved as read with a modification adding Julie Farrar as a committee member.

AGENDA ITEM DISCUSSION:

2.       Legislative Update:

·         HB09-1001, HB09 1281, SB09-228, and SB09-263 have all been signed into law by Governor Ritter.

·         SB09-1293 Hospital Provider Fee bill has caution written all over it and we as a disability community must monitor the planning and implementation very carefully to insure that the intent of the law is attained. The advisory committee is meeting every two weeks and two sub committees are forming to further research Medicaid Buy In and Childless Adults, dates have not yet been determined, however it is advisable that we have strong participation at these meetings for networking and input.

·         SLS – Issues are surfacing daily with consumers reporting cuts and denial of benefits. Reports from meeting conducted between the ARC’s, PADCO, and DDD resulted in serious issues with SEP’s and  navigation of system benefits. DDD is asking for consumer participation in the creation of a document to be sent to consumers that would assist with navigation with a summary of system benefits and eligibility.

·         CCB State Audit Hearing- The hearing is scheduled for Monday July 13, 2009 10:00 am LSB first floor conference room. It is important that the disability community is well represented at this meeting. The audit is focused on both performance and fiscal review.

·         Eligibility Modernization- The RFP – there are many concerns that focus will be on non-disabled Medicaid, CHP+ with Adult disabled and other programs to be put off until a later date. This is concerning because the adult disabled programs continues to be shoved to the back and often never surfaces again.

·         CDASS – Aggie Berens is transferring from HCPF to HHS, we are hopeful that this won’t be detrimental to consumers however because Aggie was so open to direct contact we may see ramifications. Dr. Wadhwa hopes that a member of the disability community will apply to participate on the position review panel.  Finally, HCPF has moved forward as RFP’s are being accepted and will be awarded for Intermediary Services (formerly ACCENT) for the CDASS programs.

3. Healthcare Update – Irene was not present to give a report, however, there is action with Healthcare Reform and a very well attended rally was conducted by Healthcare for All Colorado at the Denver Capitol on Saturday May 30, 2009. Recent information shared by Joan Heneberry and Diana DeGette offers no support for Single Payer, however, both say that there must be a public plan to address the needs of the disabled community and seniors.

4. Employment – Bob Lawhead  reported on the Collaboration to Promote Self-Determination Policy Brief that details many issues that we continue to face with hiring and pay practices and action to eliminate sub minimum wage, he will send a copy of the policy brief to PP/L committee and  council.. Bob and representatives from the Aurora and Ft. Collins Project Search Teams will attend the Project Search Conference in Atlanta. Distressing news that Henry’s Turkey Farm was recently in the media charged with sub standard housing and pay for disabled workers. Bob was pleased to report on some very successful business owned by individuals with disabilities.  

5. Three bills to be pursued during the summer and fall will be

a.       Strengthen the language and number of boards and commissions listed with HB09-1281 “Nothing About Us without Us.

b.       Pursue methods and write a new bill that would result in parity between Home Health Providers and Nursing Homes. Researching several possibilities.

c.       Support the writing of a bill for Healthcare Reform.

6.       New Business –

·         Chair Mike McCarty suggested that DDC consider co-sponsorship or a brief should CCDC purse legal action for civil/constitutional violations that result from the many changes to (SLS) Supported Living Services. This must have council approval which will be sought by Marcia and Mike.

·         Need was expressed to have stronger networking and partnerships with other disability groups. Mike will set a meeting for he and Marcia with Denver Fox PADCO to discuss visions and collaborate on future action planned and implemented by DDC

·         Welcome to Representative Jerry Frangus as the new Legislative Liaison to the PP/L Committee

7.       Old Business:  HB09-1001 Tax Credit for Big Business Employers-DDC will welcome all to Colorado, remind them of ADA, hiring practice, and offer resources.

_________________________________________________________________________________

ACTION/MOTION/CONSENSUS - All actions are supported through recommendation as a quorum was not present.

_______________________________________________________________________________________

COMMITTEE FOLLOW UP…BY WHOM/ BY WHEN:

Mike McCarty – Contact Representative Pommer for Nursing Home bill sponsorship and support asap. Mike will set a meeting with Denver Fox PADCO for he and Marcia to discuss visions and collaborate on future action planned and implemented by DDC asap. Obtain approval for support of CCDC pursuit of legal action pertaining to SLS federal law violation. Before next meeting

Bob Lawhead – send copy of CPSD Policy Brief to PP/L committee and council asap.

Sheryle -  pursue and set meeting for Nursing Home Parity Research Committee with Representative’s Ferrandino and Marostica. (Hope for week of July 20). Meet with Melodie Beck JBC staff to gather information on the Nursing Home Provider Fee project that implemented in April 2009. Next 2 weeks.

Attend CCB Audit Hearing, email notes from this meeting to PP/L Committee - week

Marcia Tewell – Contact Sue Williamson HCPF again to gather nursing home statistics asap.

Write welcome letter to big business encouraging hiring of disabled and reminding of ADA compliance and the possibility of dual tax credits and approach DDC to obtain approval for support of CCDC pursuit of legal action pertaining to SLS federal law violation. Before next meeting

_____________________________________________________________________________________

Those in attendance: Mike McCarty, Mike Hoover, Bob Lawhead

Excused: Irene Aguilar, Xenia Cathy Grant, Julie Farrar

Staff Present: Marcia Tewell, Sheryle Hutter

Guests:  Community Member - Donna Downing..

thank you for joining us and sharing your very important input.

Next meeting – August 10, 2009 11am – 1 pm. Colorado State Capitol - basement

 _______________________________________________________________________________________

           

Meeting Activities  
Date: 
May 4, 2009

ISSUE:

  1. Health update (Irene)
  2. Employment update (B. Lawhead)
  3. Selection of Bills (3-5)
  4. Legislative update (Sheryle)
  5. New business
  6. Old business

DISCUSSION:

     1.       Health update:  Irene gave an update on 1273 indicating that Rep. Kefalus had pulled the bill in anticipation of not getting the vote to support it.  It will be reintroduced next session.  In the interim (summer) it is important to contact members who may not have supported the legislation to build understanding with the content of the bill.  The Autism Insurance legislation has passed and will most likely be signed by the Gov. in early June.  1293 was passed and signed by the Gov. re: Children’s Hospital.  CICP is mentioned as getting an oversight group to look at outcomes and services.  1358 was pulled by Rep. Rice as he found no support for it.  It would have mandated insurance coverage with no reform connected.  1281 Persons with Disabilities on Boards passed and should be singed on June 2nd.  Please attend if you are able. 

2.  Employment update: Bob updated the committee on SB 05 (’08) that should be implemented and still there is no report to HHS or the JBC on the implementation.  He has not seen the reports due to the JBC and will email VR and others to see what the status of the reports are. Additional information on the stimulus pkg. Is out with 25% coming in year one, 50% year two and the last 25% in year three.  Of the $7.3 million, $1.8 would be projected to arrive for year one.  The order of selection has been lifted at VR.  Research is still taking place to confirm numbers employed from VR and DD as there is a conflict between the two.  Meeting with Sharon Jacksi will include this topic.  There were 350 people employed by V.R. with the definition used by VR, however, information out of DD indicates a decrease in employment

Bob updated the committee on a summit that the Council is hosting with CO. APSE on employment at the Radisson on May 11th. 

3. Sheryle updated the committee on #1101, 1281, 103, 228, 263, 1273, 1358 and 1293.  See her email for details.

4.   New Business – Mike noted a need for new members on the committee.  Each member is to recruit at least one new member and build membership over the summer.  New Council members may also choose this committee as part of their commitment to the Council.  Potential names in clued Julia Beems of AT Partners, Julie Farrar, Bruce Goghan of Boulder, Lolita Santiago (who has been attending) and Rep. Frangas. 

5. Work over the summer is to include the sponsorship of at least three bills including one to create parity between home health and nursing home rates on the COLAs, health care reform, and expanding the reach of the persons serving on boards.  Also on the summer agenda is meeting  and developing relationships with legislators and informing them of the Council’s values.

ACTION / MOTION / CONSENSUS

The committee decided it will meet monthly over the summer and go back to weekly once the session begins again in Jan. _

BY WHOM/ BY WHEN:  see above

Those in attendance:   Mike McCarty,  Xenia Grant, Ed George, Bob Lawhead, and Irene Aguilar

Staff Present: Marcia Tewell, Sheryle Hutter

_______________________________________________________________________________________

Meeting Activities Date: 
March 30, 2009
Legislative & Public Policy Committee

_______________________________________________________________________________________

ISSUE:

  1. Health update (Irene)
  2. Employment update (B. Lawhead)
  3. Selection of Bills (3-5)
  4. Legislative update (Sheryle)
  5. New business
  6. Old business

DISCUSSION:

1.       Health update:  Irene gave an update on 1273 indicating that it had passed the full House on a 5:4 vote last week.  It is going to appropriations now.  Four people testified against the ill with the rationale that the #208 Commission had already done the work of the study group, it is unrealistic to expect to be creative with no state resources, and the state can’t do a publicly funded system as the President won’t approve a waiver that would be necessary to carry the ideas forth.  Members should contact Judd and Kerr and Riesberg for the appropriations committee vote. 

2.       Employment update: Bob updated the committee on SB 05 (’08), which should be implemented as of today.  He has not seen the reports due to the JBC and will email VR and others to see what the status of the reports are. Additional information on the stimulus pkg. Is out with 25% coming in year one, 50% year two and the last 25% in year three.  Of the $7.3 million, $1.8 would be projected to arrive for year one.  There is no indication that order of selection will be lifted in the fall as the dollars start to flow in to the state.  This will impact Project SEARCH greatly as there would not be VR dollars to support individuals in their employment.  Last, there were 350 people employed by V.R. with the definition used by VR, however, information out of DD indicates a decrease in employment.  We still need to cross reference these numbers and see if the people counted by VR are the same as those by DDD given the difference in increased jobs vs. decreased jobs.  

CO.  APSE will have a public forum on employment at the Radisson on May 11th.  Details to follow but clear the calendar and let others know of the event. 

     3.       Sheryle updated the committee on 1001 regarding tax incentives for employers.    The committee has not heard back from the Gov. re: a letter to the Gov. to reinstating Liston’s bill from the “08 session re: tax credits for employers of individuals with disabilities.  Sheryle had a good success with 1281 by getting a language change to “Shall, when possible” re; persons on boards as well as additional boards being added to the list.  We hope the Gov. will sign the bill after all the efforts and full support of each committee vote.  1293 re: new hospital funds was discussed.  We will research to see if Medicaid Buy-In is actually part of the bill or just a recommendation within it.  228 re: 6% was discussed and Marcia will make sure the Council is signed on.  Bob raised a federal piece of legislation via FJA on higher education and funding for students with disabilities, Comments are due by April 1 so Bob will email Marcia to send out the information asap.  Sheryle mentioned a bill that Ed George knew about and was able to contact the MH lobbyist about.  The bill is regarding medications administered while people are in prison.  The bill is positive in that it mandates treatment plans to be followed while people are incarcerated, but also uses the term ‘force’ related to medications.  This would be better worded with ‘medicated as indicated in treatment plan’ otherwise staff may interpret the language to mean more forceful means.  This bill is 1253.  Sheryle has contacted the ACLU and CCRJ/Pam as it has passed through both houses and on the way for Gov. signature.

4.       Bills to be followed:

HB 09-1281 formerly 1048 the Nothing About Us Without Us bill –HB -103 – Unfair Practices Incentives Carroll –A bill to do away with the 6% appropriation sponsored by Sen. Morse is SB 228. 

ACTION / MOTION / CONSENSUS

BY WHOM/ BY WHEN:

  1. Review possible bills and come to next week’s meeting with suggestions for the bills to follow (all committee members).
  2. Irene is attending any meetings hearing regarding comprehensive health care.
  3. Sheryle will continue to research various bills and report out on those of priority to the committee.
  4. Marna will follow the A-B 228 legislation and report to the committee.
  5. Mike will follow any new bills and get with Marcia about those that may be within the Plan.

Those in attendance: Mike McCarty, Xenia Grant, Ed George, Bob Lawhead, and Irene Aguilar
Staff Present: Marcia Tewell, Sheryle Hutter

_______________________________________________________________________________________

 Meeting Activities 
Feb. 23, 2009

Legislative & Public Policy Committee

_______________________________________________________________________________________

ISSUE:

  1. Health update (Irene)
  2. Review of HB 09-1048
  3. Employment update (B. Lawhead)
  4. Selection of Bills (3-5)
  5. Legislative update (Sheryle)
  6. New business
  7. Old business

_______________________________________________________________________________________

DISCUSSION:

1.       Health update:  Irene gave an update on those co-sponsors for the 1281 Comprehensive Health Care legislation which will be heard at 1:30 in Supreme court Chambers on Wed.   It was decided that there is no huge need for testimony at this point.  Joe Beaver of CCDC is testifying on behalf of the disability community. Mike Nelson made a motion to support the bill and Xenia seconded it.  Passed unanimously.

2.       Employment update: Bob gave an update on the use of federal stimulus funds with the possibility that dollars could be flowing by Oct. 1 and the Order of Selection could possibly be lifted then, although there is no certainty.  Colorado is 49th in the ratio of federal funds to be received due to TABOR.  Sheryle updated the committee on 1001 regarding tax incentives for employers but indicated that the bill still does not have disability included and that Sen Moe Keller may be able to get that provision added.  Sheryle will work on that language and talk with Sen. Keller. Marcia spoke with DVR about numbers of employed (350) and discovered that this number includes those in DDD also as a cross -reference.  DDD estimates that supported employment rates have dropped by 2% in the last year.

3.       Bills to be followed:

  • HB 09-1281 formerly 1048 the Nothing About Us Without Us bill – the current boards listed are permissive based on the Gov’s office request not to burden future administrations with a mandate.  Two more boards could be added  - education and corrections as well as change the permissive to mandatory.  The committee decided to add two more boards with an amendment if possible.  The bill passed 9-2 last week at second reading in the House.
  • HB -103 – Unfair Practices Incentives Carroll – Sheryle continues to follow this legislation in insurance reform.
  • A bill to do away with the 6% appropriation sponsored by Sen. Morse is SB 228.  Marcia updated on the content of this. Marna and Todd Coffey will update the full Council on the bill at the March meeting.  The committee received information and discussed the content of the bill.  It will basically release the 1991 legislation from appropriation caps that currently tie the hands of the JBC in how and where to spend the few dollars that are available.  Dollars mandated for transportation would take the biggest hit if the bill passes.  Mike made a motion to support the bill with a second by Xenia.  Passed unanimously. 
  • Ed George updated the committee on two pieces of legislation including Rep. Carrol’s bill on insurance reform 61 as well as 166 a prescription bill that is related to 103.  There was also a psy. rehab. bill on training that had a 5-3 vote (#120) that was to sunset. 

8. New Business

_______________________________________________________________________________________

ACTION / MOTION / CONSENSUS – the committee decided to follow the following three bills:  1281, 103 (bad faith claims to deny services with incentives for insurance companies) and the Single Payer bill 228.  Another bill 1001 has been added to follow regarding incentives for employing people.  The committee voted to support the comprehensive health care and the Arv.-Byrd amendment from 1991 as priority. The bill limited 6% to appropriations, not to spending as does TABOR.  

_______________________________________________________________________________________

BY WHOM/ BY WHEN:

  1. Review possible bills and come to next week’s meeting with suggestions for the bills to follow (all committee members).
  2. Irene is attending any meetings hearing regarding comprehensive health care.
  3. Sheryle will continue to research various bills and report out on those of priority to the committee.
  4. Marna will follow the A-B 228 legislation and report to the committee.
  5. Mike will follow any new bills and get with Marcia about those that may be within the Plan.
  6. Marcia, Irene, and Tom Bost have finished articles on health reform for the Council newsletter and will get those to Marna as editor.

Those in attendance: Sheryle Hutter, Irene Aguilar by phone, Mike McCarty, Bob Lawhead, Xenia Grant, Ed George, Mike Nelson

Staff Present: Marcia Tewell

Guests:  Stacy Baesman

 Meeting Activities
Date: Feb. 9, 2009  

_______________________________________________________________________________________

ISSUE:

  1. Health update (Irene)
  2. Review of HB 09-1048
  3. Employment update (B. Lawhead)
  4. Selection of Bills (3-5)
  5. Legislative update (Sheryle)
  6. New business
  7. Old business

  _______________________________________________________________________________________

DISCUSSION:

1.       Health update:  Irene gave an update on those co-sponsors for the Single Payer legislation as well as on the content.  Debate on the content as well as the long range outcomes took place

2.       Employment update: Question was raised about the count at DVR of 350 employed while the DDD reports that an approximate 2% decline in supported employment.  Marcia will check with Linda Dunn to see which definition was used and how the discrepancy exists.  

3.       Bills to be followed, potentially:

  • HB 09-1281 formerly 1048 the Nothing About Us Without Us bill
  • HB -103 – Unfair Practices Incentives Carroll
  • A bill to do away with the 6% limit to be sponsored by Sen. Morse with no assignment at this point.  Marcia updated on the content of this.

8. New Business
_______________________________________________________________________________________

ACTION / MOTION / CONSENSUS – the committee decided to follow the following three bills:  1281, 103 (bad faith claims to deny services with incentives for insurance companies) and the Single Payer bill that has no number as of this time.  The committee reserved the option to possibly support a bill to change the Arv.-Byrd amendment from 1991 as a fourth priority. The bill limited 6% to appropriations not to spending as does TABOR.   No decision was made yet on the Single Payer bill but will be continued to next meeting.

_______________________________________________________________________________________

BY WHOM/ BY WHEN:

  1. Review possible bills and come to next week’s meeting with suggestions for the bills to follow (all committee members).
  2. Marcia will contact Linda Dunn and DVR on stats.
  3. Irene is meeting with possible co-sponsors for the Single Payer bill.
  4. Sheryle will continue to research various bills and report out on those of priority to the committee.
  5. Marna will attend meeting on Arv.-Byrd amendment and report to the committee.
  6. Mike will follow any new bills and get with Marcia about those that may be within the Plan.

 

Those in attendance: Sheryle Hutter, Irene Aguilar, Mike McCarty, Bob Lawhead, Xenia Grant. Menda Warne

Staff Present: Marcia Tewell

Guests: 

Personal attendant:

 

 

 Meeting Activities
Date:  November 3, 2008

ISSUE:

Call to Order, Introductions, Minutes

Nov. Council meeting

Employment issues

Quality Assurance update

Health Update

Liaison opening

DDD Caretaker waiver updates

D.D. Definition committee

New Business

Old Business

ACTION / MOTION / CONSENSUS

Minutes:  The October minutes were delayed for approval due to lack of quorum.  Will be read at the next meeting.

Nov. Council meeting: The committee will present to the full Council at the Nov. meeting.  A. Irene has a handout on activities with the recommendation that individual names be inserted so that the committee activity may be clearer.  To dovetail with the committee activity sheet that all Council members use, it was recommended to add the outcome and purpose of the activities on the handout.  Irene will take edits.  B. The yellow Council position sheet was also handed out and can be edited to delete the specific bills of last session, then used as our position statements in meetings with policy makers.  C.  The Tips for Talking with Legislators can be handed out at the Nov. meeting as well as the information on Council members legislative contacts.  D.  The agenda for the meeting will remain the same with the exception that Marcia will present on the definition since Mike has not been able to make meetings.  Pat will check attendance of presenters to see if last minute presenters are necessary, i.e. Bruce Cline on the Autism Commission.

Employment: Marcia passed out a memo from VR indicating that the ‘order of selection’ is now in place but may be lifted at a later date.  The letter indicates that individuals with significant support needs will be served first if there is a need for a waiting list and some individuals may not receive services in a timely manner.

Quality Assurance Update – Diane sent copies of her comments on the committee process. 
She has some concern that when data is collected, there is little mechanism for a long-term correction to decrease events related to MANE.   The Plans of corrections may not be enough to correct long-standing issues.  There is one more meeting of the committee yet much work to do related to specific recommendations in rules, waiver rewrites etc.  The committee recommended that she write a summary of concerns after the committee ends its work if issues are not addressed within this last month of meetings. 

Health – Irene updated the committee on the Single Payer bill.  They will meet Dec. 8th before our next meeting to decide where to go for sponsorship of the bill. In addition there is a Health Day at the Capitol on Dec. 3rd that is a Wed. from 1:00 to 4:00.  The Executive Committee discussed methods of selecting information regarding legislation during the session with the paper bill box, Statebill.com and ‘County’ free on-line services.  The E.C. decided not to fund any of the above options based the rationale if the committee follows the Five Year Plan, creates proactive legislation, and limits the number of bills to priorities of the Council, there is no need to track ALL bills.  Marcia will provide a summary of the Five Year Plan so that members can use that as reference in making decisions regarding legislative efforts at the Dec. meeting.   Irene met with Rep. Labuda about her legislative proposal to have two people with disabilities sit on any state advisory group that makes decisions about persons with disabilities.  It is deemed the “Nothing About Us Without Us Bill.  Sharon Jacksi was sent a letter about the absorption of new resources and capacity of the current system.  We may want to follow up with a meeting depending on if Amendment #51 passes – thus doubling the number of people in need of services from the waiting list.   Penny Gonnella will contact Karen Beye to discuss employment issues as well as other issues related to Council values and policy. 

Legislative liaison:  Marcia has written a scope of work for the position that has to be approved via purchasing as an agreement.  Once the state approves the language, the position will be sent out via email to the Council’s list.  The position will be for about 12 hours a week during the session at $20/hr. for a total of $5,000.  An informal discussion occurred about the replacement of the FTE policy analyst and the structure of the Council as it relates to the direction of the Five Year Plan. The liaison is not meant to supplant the work of the Council, committee, or staff, but to augment and provide direct conversations with legislators about legislation that is directed by the Five Year Plan. 

Caretaker legislation –Sheryle reported that the CDASS part of the waiver may not actually meet as a separate group as originally planned.  Sheryle reported that the committee is waiting for clarity between DHS and HCPF regarding a number of issues.  An area of concern in the legislation is that the payment to family members vs. the location of the supports, i.e. the family home.  The A.G. office came out with a decision that family members could not be paid outside the home i.e. in the community, which was not the intent of the legislation. Sheryle will contact Sen. Boyd to see if the intent can be altered to reflect the location issue.  There are concerns about Accent, the fiscal agent for CDASS, in that it is the only entity in that role.  Some people have not been satisfied with Accent and want an alternative. CCDC and Sheryle will keep us apprized of the progress on this issue.

D.D. Definition – Marcia has attended meetings and testimony on the definition.  The committee is charged with creating both recommendations for statutory changes as well as regulatory/rule changes.   The consensus of the committee is currently to use three areas of adaptive skills to meet eligibility (rather than the current two) OR to use IQ of 70 or below.  With this approach, individuals could become eligible if they meet only the adaptive requirements.  The Vineland would most likely be the tool to determine adaptive skills as it is used internationally.   There is no possibility for a separate Council position as the group agreed that the committee would speak for each of the entities on the committee when consensus is reached at the meetings. The final recommendations and report must be completed by Nov. 15th.  

New Business:  none

Old Business: none

BY WHOM/ BY WHEN: 

See italics above

Those in attendance: Mike McCarty, Irene Aguilar, Sheryle Hutter, and Mike Nelson

Absent: Rep. Stafford, Diane Rehner, Stephanie Garcia, Bob Lawhead

Guests: 

Staff Present: Marcia Tewell

Personal attendant:


Meeting Activities

Date:  October 6, 2008

ISSUE:

  1. Call to Order, Introductions, Minutes
  2. Nov. Council meeting
  3. Legislator recognition
  4. Liaison recommendations
  5. Updates
  6. Ballot Information national platforms
  7. D.D. Definition committee
  8. New Business
  9. Old Business

ACTION / MOTION / CONSENSUS

  1. Minutes:  The minutes were approved with a motion by Irene and second by Xenia.  Changes to minutes include striking the term ‘thrown out of services’ to ‘found ineligible’ for services.
  2. The committee will present to the full Council at the Nov. meeting.  A. Irene has a handout on activities with the recommendation that individual names be inserted so that the committee activity may be clearer.  To dovetail with the committee activity sheet that all Council members use, it was recommended to add the outcome and purpose of the activities on the handout.  Irene will take edits.  B. The yellow Council position sheet was also handed out and can be edited to delete the specific bills of last session, then used as our position statements in meetings with policy makers.  Beverly will finalize this information sheet.  C.  The Tips for Talking with Legislators can be handed out at the Nov. meeting as well as the information on Council members legislative contacts.  D.  The agenda for the meeting will remain the same with the exception that Marcia will present on the definition since Mike has not been able to make meetings.  Beverly will check attendance of presenters to see if last minute presenters are necessary, i.e. Bruce Cline on the Autism Commission.
  3. Legislator Recognition – Marcia took the recognition to Rep. Debbie Stafford earlier in the day although she was not in her office personally.
  4. Liaison recommendations:  Members are getting applications to Boards and Commissions.  Because the Council has not traditionally recommended legislators to sit on the Council, Marcia will check with Boards and Commissions to see what they view as the process for these special appointments.
  5. Updates:  The E.C. discussed methods of selecting information regarding legislation during the session with the paper bill box, Statebill.com and ‘County’ free on-line services.  The E.C. decided not to fund any of the above options with the rationale that if the committee follows the Five Year Plan, creates proactive legislation, and limits the number of bills to priorities of the Council, there is no need to track ALL bills.  Marcia will provide a summary of the Five Year Plan so that members can use that as reference in making decisions regarding legislative efforts.   Irene met with Rep. Labuda about her legislative proposal to have two people with disabilities sit on any state advisory group that makes decisions about persons with disabilities.  It is deemed the “Nothing About Us Without Us Bill.”  Sheryle provided an update on the Caregiver committee indicating that the A.G. to mean services will be provided in ONLY the family home – not the community, has interpreted the bill.  Sheryle will call Sen. Boyd to see if she can assist in the intent of the legislation to widen the service definitions for the waiver rewrite.  Marcia will call HCPF to see what the numeric limit is on ability to bill directly to HCPF for providers as that has been part of the discussion at the Caregiver meeting also.  Sharon Jacksi was sent a letter about the absorption of new resources and capacity of the current system.  We may want to follow up with a meeting depending on if Amendment #51 passes or not – thus doubling the number of people in need of services from the waiting list.   Bob updated the committee on the cost containment issues in V.R. and the result of vendors not contracting on supported employment.   The E.C. sent the letter to Karen Beye out requesting a meeting to discuss our values.  The E.C. recommended a similar meeting with Joan Henneberry.  Beverly will facilitate the meeting coordination after elections as much of the discussion hinges on the passage of #51. Meetings should occur even if #51 does not pass.  Scheduling can take place ASAP assuming meetings would not take place before the elections.
  6. Ballot information was passed out to members who may be undecided or know of others undecided for distribution.
  7. D.D. Definition – Marcia has attended meetings and testimony on the definition.  There continues to be much misunderstanding of the definition and process.  The committee is charged with creating both recommendations for statutory changes as well as regulatory change and the Dept. will take those recommendations into consideration.  Two JBC members sit on the committee, thus if legislation is necessary, they are willing to carry it.  The DDD sees the recent rule making as putting into rule their practice, not as limiting the eligibility.  Most of the committee members want the federal definition, a functional definition and to drop the IQ due to it’s being arbitrary.  There is no need for a Council position until the recommendations come out of the collective process given the current consensus.
  8. New Business:  none
  9. Old Business: none

Those in attendance: Mike McCarty, Irene Aguilar, Xenia Grant, Sheryle Hutter, Ed George, Bob Lawhead, and Mike Nelson

Absent: Rep. Stafford, Diane Rehner, and Stephanie Garcia

Guests:  Aileen McGinley

Staff Present: Marcia Tewell

Personal attendant: none

 

 


Meeting Activities
September 8, 2008
11:00-1:00

.

Minutes Review from August 4

Irene Aguilar motioned to approve the minutes from August 4; Ed George seconded; they were consensually approved.
 
September Council Meeting

·         Mike McCarty will facilitate the Legislative/Public Policy portion of the Council meeting.  He will give his thoughts as he did at today’s meeting.  Irene Aguilar suggested handing out the Tip Sheet on Contacting your Legislator, developed by the Minnesota Council.  Irene will distribute to the Committee to edit for Colorado as necessary.

·         The Committee concurred with Mike McCarty’s idea to have the primary presentation for the September Council meeting be highlights of the Democratic National Convention from a disability standpoint.  Sheryle Hutter offered to speak with Joe Beaver, Julie Reiskin or Dawn Russell to present from 20-30 minutes at 1:30 on September 24th.

·         The Committee agrees that a short briefing will be given on our most recent legislative successes and challenges and public policy issues.  Irene offered to develop this with Sheryle’s assistance.

·         Bob Lawhead will present on SB 05’s progress.  Sheryle will present on the Family Caregiver Workgroup’s progress.  Diane Rehner will present on the Quality Assurance Committee work.  Mike McCarty will present on the Definition Committee work and CDAS in the DD Waivers.  The Committee would like Xenia Grant to present on the Autism Commission’s progress.  Staff will contact Xenia to see if she will do this.  Irene will present on the Vulnerable Population Task Force efforts and recommendations.

·         The Committee requests that staff send out a special invitation to Council members to attend this unique and informative meeting. 

Legislative Liaison Recognition

·         The Committee agreed that a plaque/acknowledgement and letter should be arranged for our Legislative Liaison who is term limited.  A letter will be sent with a special invitation to the September meeting.  It will ask what time she may be able to join the Council.  Staff will follow up.

Collecting a Legislative Liaison Pool for Membership Committee

·          Diane Rehner has asked Representative Kefalas to submit an application.  He is in the process of completing the application and updating his resume. 

·         Linda Dunn has asked Diane Primavera.  She is considering several Councils and will get back to us.  Other Committee members will also speak to her.

·         Sheryle will ask Morgan Carroll.

·         Mike McCarty will ask Representative Gagliardi.

·         lrene will ask Representative Frangas.

·         Menda will ask Scott Renfroe and Shawn Mitchell.

·         The Committee also suggested ideas to help Council members. Irene will distribute Tips for communicating with legislators from Minnesota’s Council. Ideas suggested by Committee members will be added to the Tips sheets for distribution at the Council meeting.  Sheryle suggested calling legislators to make sure an email from a constituent has been noted and to ask to be part of the record that the call was made and a particular position taken.  Diane suggested that the subject, bill name and town be included in the subject line of an email.  Irene added that support or oppose be included in the subject line.  The entire Committee suggested that any email contain a confirmation request.

Legislative Information: State Line, Bill Box, Other

·         The Committee had a discussion about community collaboration and the importance of not duplicating efforts.  It was determined that a variety of perspectives help cover all bases and ensure that Council values and positions are not compromised.  Staff will supply pros and cons about each system to Committee members that can bring the Legislative recommendation of State Bill to the Executive Committee.

·         Bob Lawhead suggested that the community should reconstitute C-3, a DD collaborative of people with developmental disabilities, parents, advocates and providers.  His recollection of their work was in the areas of wait lists and rates.  Bob will speak to Marcia about the Council’s potential participation in a renewed effort

Cost Containment Proposal

·         Diane Rehner and Bob Lawhead will take one more look at the potential to draft a proposal.  They are stymied by unique accounting within each CCB, particularly the inability to compare schedule C.

Proactive Legislative

·         Irene reported that she will speak with Representative Labuda this evening regarding bill sponsorship.

·         Irene has drafted a letter to Karen Beye about the Council working with the Department to increase capacity when the ballot initiative for funding the wait list is passed in November.  Staff will distribute to the Committee for editing prior to being presented to the Executive Committee.

DD Definition Clarification

·         The Committee discussed the potential for people to be thrown out of services since the rules have added an IQ requirement to the statutory adaptive function.  It is important that the word be spread that if people are terminated due to a change in eligibility, that they appeal and that they contact The Legal Center.  Mike McCarty is the Council representative on the Division workgroup working on the definition; Marcia Tewell will work with Mike on this issue.

New Business

-Irene suggested that people look at the 50 recommendations by the Vulnerable Populations Workgroup.  She is especially interested in feedback on what might be important and not costly.
 Staff will provide feedback including what might already be in rule by September 25.

October Meeting Change

·         Beverly Hirsekorn asked Committee if they want to change the date of the meeting since she will not be available that day.  The Committee would like Marcia to staff Committee if possible rather than change the Committee date.  Beverly will ask Marcia.

The meeting adjourned at 1:00.
________________________________________________________________________________

Attendees; Mike McCarty (Chairperson); Irene Aguilar; Ed George; Sheryle Hutter; Bob Lawhead; Mike Nelson; Diane Rehner; Menda Warne (phone) Beverly Hirsekorn (staff)

Next Meeting:   October 6, 2008, State Capitol, Room 111

 


Meeting Activities
August 4, 2008
11:00-1:00

.
Minutes Review from June 16

Irene Aguilar motioned to approve the minutes from June 16; Xenia Grant seconded; they were consensually approved.
 
DD Definition

·         Aileen McGinley reported on the change to the eligibility definition.  The change impacted the functional part of the definition that pertained to children and adults with autism, epilepsy and cerebral palsy.  Counsel for the Department of Human Services established a declaratory order, intending to make eligibility determinations consistent across CCBs.  The Division for Developmental Disabilities recommended a rule change to the Human Services Board to narrow eligibility for people with adaptive function challenges.  The rule established an IQ benchmark for measurement of people with adaptive challenges.  Mike McCarty gave testimony on behalf of the Council that stated that current practice for adaptive function evaluation is not an IQ but other quantitative and qualitative measures.  It is not clear whether the rule might go beyond the scope of its legislative authority.  Many people and constituencies testified against the proposal.  The two CCB organizations testified in favor of the proposal.  The Attorney General will not allow a hold harmless clause.  The Denver Arc is aware of at least 5 of its clients that may be suspended from services when their annual evaluation occurs, based on the new rule.  Aileen will work with Irene on a letter to educate policymakers on the impact of the new rule.

Letter to Sharon Jacksi

·         Irene has completed the letter.  Staff will obtain signatures, remind that a courtesy call is in order, and send it out.

·         The Committee discussed drafting a similar letter to Karen Beye.  Irene will draft a letter for the Committee.  Since Community Centered Boards are concerned that they may have difficulty creating capacity for the large number of resources this year, it is important that the Division for Developmental Disabilities start planning with stakeholders in advance of the ballot issue passing.

Cost Containment Proposal

·         Diane Rehner reported that she talked with Bob Lawhead but still have to create a proposal.  They will try one more time to have something for the committee to consider in September.  Irene and Bob will report in September.

Legislative Information

·         The Committee discussed the merits of using StateBill, Bill Box service, and the county bill service.  Having experience with the three possibilities, consensus was that StateBill was the most comprehensive, and up to date service.  It does cost $875 compared to $450.  Staff can obtain bills of interest for free from the Bill Room for replication and distribution.  Staff time is the major savings along with the efficiency of timely updates on amended legislation.  Transcripts are also available through Statebill.  Staff reviewed the conventions available from the county service.  This service provides only the most basic monitoring with a limited synopsis of bills.  A user must identify what bills they want to monitor if the county is not already monitoring.  The system seems most appropriate for public users tracking minimal bills.  Its main advantage is that it is free.  Basic Bill Box service is labor intensive despite having much experience in its use.  Mike and Irene will advise the Executive Committee of the Legislative/Public Policy Committee’s recommendation.

·         The legislative proposal has been vetted with a variety of advocacy groups.  The Committee considered two suggestions to enhance the bill. It was determined to keep the bill in its purest form at this time.  The second suggestion will be incorporated into the bill in a way to deter the creation of a fiscal note.  Irene will ask Representative Labuda if she would like to be the primary sponsor because Representative Stafford is term-limited.

·         It was reported that Representative Buescher will propose legislation for electronic transfer of records for children in foster care and the nursing home population.  Christy Blakely and Arlene Miles are working with him.  Another bill may be forthcoming to assist individuals that were in forensics and completed their sentence, to transition to community service.  Currently they are being retained in forensics beyond their sentence because community services are not available for them.

September Meeting

·         The Committee will present a report on what occurred during the last session.

·         It will also report on its legislative proposal(s).

·         As an implementation committee member, Bob Lawhead will report on implementation of SB 05 and SB 04.

·         As an implementation committee member, Sheryl Hutter will report on implementation of SB 02.

·         As a committee member, Xenia Grant will report on implementation activities for the Autism Commission.

·         As a committee member, Diane Rehner will report on DD Quality Assurance activities.

·         As a committee member, Mike McCarty will report on DD Definition workgroup activities.

The meeting adjourned at 1:00.

Attendees; Mike McCarty (Chairperson); Irene Aguilar; Ed George; Xenia Grant; Aileen McGinley; Diane Rehner; Beverly Hirsekorn

Next Meeting:  September 8 2008, State Capitol, Room 111

 


 

   Colorado Developmental Disabilities Council
3401 Quebec St. Suite 6009
Denver, CO 80207

720-941-0176 (phone)     720-941-8490 (fax)